Robynnblue

How do I PM you? Would love more information on BFS to ease my mind. Thank you.

Hi Robyn.
I was unable to contact you on Facebook. Wondering if you could maybe reach out to me on here? Having a really hard time dealing with these symptoms.

Hello Robyn,

I have read a lot of your stuff and it looks like you are well versed in the world of BFS. I am having a very vdfy hard time dealing with mine. I was diagnosed with early onset parkinsons. Then they said possible ALS. Now nothing but BFS. I just don't believe it. It has been really crushing for me I was in the psych ward for almost a month. Does it every get easier??

Hey this is shadowjason, u responded to a post of mine in 2012. I was the guy with a abnormal emg and twitching, I know there are prob 1000 guys like that on here lol...anyway I wanted to connect with ya. I was unable to do further testing for my condition due to cost, but it has been over a year with little change. Still twitching , still sore and rubbery legs. But I am still mobile.

I'm only 25 and would love to go back to work. The twitches stop when I move and happen more when I just lay around. I have hardly any pain. I was put on lexapro for anxiety about a month ago...twitching is still hear though :/ I've had a MRI, CT, blood work as welk as chest xray...they say my twitching is just due to anxiety. I also get a shakey feeling at times...like when.your really weak when you have a cold but that comes and goes. Any help or advice would be greatly appreciated. You really seem to have a great grasp on all of this...I had the fear of ASL as many have but I have no weakness of any of my muscles so I dont believe I do at this point. sorry in advance for all the typos I'm typing on my phone there's much more to all of this. I really appreciate any advice you have

Hey! Your still on here too?? How are you?

Cynthia..just sent you a fb request...Hopefully I got the rite person lol

Going to look for you on fb rite now hun...talk soon

Also being new here I don't have exactly how this works. If you have any guidance much appreciated. Thanks cyn

Hi Robyn. I'd entertain any help or insight you have. I feel so lost and sad.., I don't feel I have control of my body.. You can email me at [email protected] facebook me my name is Cynthia capicchioni. Thank you so much for being understanding.

I sent you an email!

I do have a facebook.
Here is the URL:
https://www.facebook.com/rickson423

Also, my email is: [email protected]

Hi, got your msg will email or fb msg you..thanks

Hi Robynnblue, my name is John, I am 42 yrs. I have a.ls., new to this, would you e-mail me, i am not sure how to use this site, I need someone to talk to. I understand if you feel unconfortlbe. Thank you in advance. John Pace. [email protected] FB- John Pace- Wildwood crest nj. TY!!

Hi there , found my way back to your name.. I'll be in touch... Many lost BFSers out there who can't get any relief or hardly any education on BFS..