venting

  1. C

    Birthdays and celebrations

    So today would have been my dad's 71st birthday. I woke up just fine. I thought to myself, okay you got this. As the day wears on I am fighting back the tears. I remember last year on his birthday he cried so bad when we sang to him. He knew it would be his last. He knew!!! Just when I...
  2. Nuts

    Venting tomorrow---which will surely cause more venting

    I think I'm officially graduating from "we're making the most of it while we can" to "Yep, this really, really sucks". It's been a tough few months, with five ER visits and two hospital stays, three cases of pneumonia and one of the flue. No Matt, when you stop choking on every bite or sip it...
  3. Lkaibel

    Today

    Today, I am again confronted with the simple fact that I cannot believe that everything we have been to each other is coming to an end. Maybe it’s 8 months, maybe three years but we have already lost much and we will lose more and then I will lose him. I think of the things I will do after...
  4. tripete

    Things that you do not hear about ALS

    In June of 2016 I posted a thread about Pain in ALS and how the "experts" tell us that ALS, as defined by the dying/malfunctioning of our motor neurons, is not painful. As time has progressed I have found many other things that "they" tell us are not issues that are. Like Smell, Bathroom...
  5. Erika

    More changes as the end gets closer :(

    My mom has been sleeping most of the day since september 15 after a crisis with secretions and saliva where we used the coughing assist. She was able to stay awake for about the time when my brother came to visit about 10 days ago. :) But every day after that, its harder and harder for her to...
  6. B

    New member intro, glad to be here...

    Hi, I'm Brook. I didn't know where else to post this. I'm not really asking if I have ALS. I am introducing myself and venting my fears to a group of compassionate people. I read all the stickies and apologize in advance if I'm too verbose. First off, I have been lurking on this site for...
  7. J

    In need of moral support

    Hello, I am new to this forum. I have been reading a lot of the threads and it seems like all of us CALS are dealing with pretty much the same things. I am the main caretaker for my mother, Audrey. My brother and I moved in with her after my father passed away a little over a year ago. Up...
  8. L

    So helpless

    I ve written here so many times with little questions along the way. My PALS is literally a walking skeleton but getting up and going to work everyday. He wont communicate a thing. He really looked wiped today. I don't know what to say, what to do, or how to help. This is the craziest, saddest...
  9. C

    Frustated with Excuses (Venting!)

    Hello everyone, I posted awhile ago, but I need to know that I am not the only one feeling like my ALS boyfriend uses his diagnosis as an excuse to not be involved in activities. And please let me explain before anyone thinks I am being selfish. We were together for several years before his...
  10. Lkaibel

    A Kind but Difficult Question

    We have kind friends and I have co-workers who ask how Brian is doing. I give my perky answer. "Great for being almost 9 months out from diagnosis. He uses leg braces and a cane and has some weakness in his hands but he is still walking and doing things". It is TRUE, my perky answer. I really...
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