Break up

[Thelights]

Doctor staples at brisbane mater hospital .
Dr peter patrikios sunshine coast .

I am literally trying to excersise now and my right ankle is definitley weaker than the left .

What other conditions have ankle weakness and hyperreflexia e.t.c ?

 

[Thelights]

Would have been waiting forever to see those other fellas inthink

 

[gooseberry]

I dont know them Tillie....I was thinking if he had seen only general neuros with no knowledge of specialty areas perhaps he should. General neuros here often dont know much about neuromuscular things.

So very glad it isnt als. Good luck with figuring it out.

 

[Atsugi]

"Why did you delete martin marisa's post Atsugi? "

That person disobeyed the rules and the post itself was the opposite of helpful.

"does it matter that I didn't get my tongue e.m.gd?"

Does not matter. Won't make a difference. Trust the doctor.

"does anybody have any suggestions as to what I do now. "

Yes, I do. It seems like you're seeing lots of super specialists but not in a coordinated investigation. I suggest you have one single GP medical doctor be the sole individual to coordinate your health investigations, deciding which specialties you should see.

 

[Thelights]

Thanks shes on holidays atm .. typical ..i want to follow up. Another question ... as i dont have complete foot drop e.t.c

Can the e.m.g pick up subtle changes in weakness to the limb? Or am i getting confused with the complete function of the emg .

Also i mentioned earlier wether having an e.m.g in my toungue would make a difference , but would it have been wise to have an e.m.g in my right "foot" (it was done in right calf) neuro didnt want to do it as it could cause infection .. that is where most of my fascics are and synptoms, feels like sprained ankle .

Cheers

 

[Nikki J]

The EMG is supposed to pick up problems before they are sensed by the patient.

I have never heard of anyone having a foot EMG. The major movements of the foot and ankle are in fact controlled by muscles in the leg. My initial symptom ( ankle weakness) was caused by a problem in a very long muscle in my lower leg, something the EMG doctor immediately suspected on hearing my symptom and quickly confirmed by testing that muscle with the EMG. You need to trust that they know better than you where a problem would originate

 

[Thelights]

Thanks niki . My foot isnt weak enough for the doctor to pin point a specific muscle so he just jabbed me in the calf.

Tried salsa dancing tonight and my legs just feel like absolute shit .
Met my ex dancing so im a bit upset that i cant just spring back in - its not stamina related but weakness related.

 

[Atsugi]

Getting real tired of this charade.

Even your parents don't support you in this crusade to ignore all medical evidence in your quest to get ALS.

 

[Thelights]

Sorry Atsugi.
I am more confident that It's not full blown ALS
How do i get registered on the BFS site . I read somewhere that they are not taking any more users ..

any alternative sites?

also thyroid forum just said (Check for cancer ... check for cancer!) Thats as bad as me jumping straight to Motor neurones in the beginning.

 

[Atsugi]

That's out of my area of expertise, sorry. Maybe somebody else knows.

 

[Nikki J]

If you actually read the sticky there is an alternative bfs site mentioned

 

[gooseberry]

Ok lights, If you read this much about als, you do realize that they can test all necessary spinal nerves with just a couple different areas of the body, right? And you do realize your never ending questions, especially when complaining of dancing stamina, upsets people who are dying and cant walk or who have watched their loved one on this journey?????

Time for you to follow your doctors advice. We have helped all that we can.