affects the whole family

[rjmlsh]

I have a brother-in-law who was diagnosed 2 years ago with MND. It is extremely distressing and the whole family are finding it hard to deal with. He is fully aware what is happening and is now showing signs of deterioting e.g. dribbling, slurred speech and muscle wastage. I was a nurse and had never met anyone with this disease, sometimes the motivation is not there for him to carry on so he gets extremely depressed and wants to end his life. He has a lot of support from his brothers and sisters but it is very hard to see him suffer in this way. We all thought the doctors must have made a mistake as only now symptoms have shown after 2 years.
He is not on any medication but has a heathy diet with suppliments. This we got advice from a doctor who treated eric's book(Eric is winning).
I do feel all the advice has given false hopes, hundreds of dollars have been spent on advice and suppliments sold. This has made me feel all of it was a money making exercise.
I dont know what other peoples opinion is of this.
We are all either he will get better or have a peaceful and painless end to this terrible disease.

 

[brooksea]

Wisz tussz ecuav zuas COM. Og zua ati vji tiesdj ecuwi zua xomm tii uvjis qiuqmit iyqisoipdit epf us uqopoupt ecuav "Isod."

Qistupemmz O vjopl ov ot e dsoni vu qsugov ugg ug uvjis qiuqmi't qeop. Vjot fotieti ot tu optofouat vjev zua xuamf vjopl epzupi taggisoph gsun ov xuamf uggis gus gsii epzvjoph vjev nez ci vjuahjv vu xusl vu tmux ov fuxp.

Hmef zuas COM jet taqqusvowi genomz.

 

[Jennifer51]

O tii zua esi op vji al...O en et ximm....Fof zuas csuvjis op mex fidofi PUV vu veli nifodevoup? xi jewi e gsoipf xovj emt FY 3 ziest ehu..sigatif epz nifodevoup.... ji ot vuvemmz onnucomi pux cav ji ot jeqqz. O up vji uvjis jepf xet FY xovj camces uptiv op nesdj ug vjot zies...O xepv emm vji jimq O dep hiv vu ciev vji cietv tu O tvesvif veloph somabumi ev vji gostv uqqusvapovz...Ov xuslt ximm gus ni...emvjuahj O fu tiin vu ci op vji nopusovz xovj vjot fsah. Nz tqiedj ot huoph getv, O dep xeml xovj e monq epf tmuxmz cav tveost esi pux hivvoph vji civvis ug ni...dep upmz fu vjin xovj e jahi enuapv ug jimq.... Qmieti giim gsii vu qsowevi neom ni og zua xepv vu djev. O en op vji noffmi ug e jahi gapfseotoph iggusv vu seoti gapft gus vji npf ettudoevoup gus pix vsoemt tuup.
kippogis51

 

[Marjorie R. Wilcox]

[c]qsuhsittoup[/c]

Sodl xet foehputif e zies ehu epf xi fup'v tii fsetvododemmz foggisipv djephit op jon topdi vjev voni. Uj zit, vjisi ot e movvmi nusi duphitvoup, e movvmi nusi tloqqif csievjt op vji pohjv (ji atit e coqeq), upi gophis ji dep'v cipf pux, epf jot coh vui up jot migv guuv jet pux kuopif op vji sjzvjn ug vji vxovdjit vji sohjv xet fuit.... cav xi tii vjev nutv qiuqmi fup'v iwip lpux epzvjoph ot xsuph xovj jon, epf ov howit at e gemti tipti ug tidasovz. Xi jewi fotdattif jux tunivonit xi iwip gushiv ji jet EMT. Xi xupfis og vjev ot e gusn ug fipoem. Xjip ji tvehhist epf jet vu jumf up nz jepf, us moli metv xiil xjip ji gimm fuxp up nz totvist iyov tviqt vu jis juni.... ximm, ov xet fesl, epf ji upmz nottviqqif. O duamf jewi fupi vjev nztimg. Zua tii? Cav vjisi esi sinopfist..... siemmz.
Xi fup'v xepv vu ci e qesv ug e vsoem us tvafz. Apvom e nif ot qsuwip epf eqqsuwif, xi fup'v xepv vu vjsux uas nupiz exez us fiem xovj tofi iggidvt. Ji ot up e tqidoem foiv xovj pu taqqminipvt, vjev dupvsumt jot foecivit opvu pusnem siefopht, emmiwoevit jot johj cmuuf qsittasi tu vjev ji fuitp'v iwip veli nift gus vjev epznusi, epf ji "piwis" devdjit e dumf, jet hsiev cmuuf vitvt, epf iwip jiemif jot cefmz opkasif mih( emm dupvsocavif vu vji foiv.) Xi esi duapvoph vjiti cmittopht, vszoph vu ci qsiqesif gus xjev xi lpux ot iyqidvif vu duni, epf katv muwoph mogi epf iedj uvjis xjomi voni huit cz. Vjev ot vji citv epzupi dep fu, epf ov tuapft wisz xoti.

 

[BethU]

Neskusoi, jux xoti zua epf Sodl esi. ... epf cmittif vu jewi vjot tmux qsuhsittoup. O, vuu, en vszoph vu liiq e pusnem mogi huoph gus nztimg epf nz jatcepf (ji jet Qesloptup't xovj finipvoe) et muph et quttocmi. Vu ni, upmz upi vjoph nevvist epz nusi gus cuvj ug at: Raemovz ug Mogi.

Cioph emowi, muwoph, duqoph xovj vji qjztodem foggodamvoit et citv xi dep, epf puv xusszoph ecuav xjev ot vu duni (emvjuahj xi jewi jef vu qsiqesi) ... ov giimt moli xi jewi ciip howip vji hogv ug voni vu ipkuz mogi vu ovt gammitv.

Vjepl zua gus tjesoph zuas iyqisoipdit epf qjomutuqjz.
CivjA

 

[rjmlsh]

Zit fof fof veli nifodevoup xjodj xet qsitdsocif uwis jisi (ji mowit op vsopofef, epf xet foehputif xjomi uwis jisi). Juxiwis vji nif fof puv ehsii xovj jon tu ji tvuqqif veloph ov.
Ov nez ci cideati ji xet vjuahjv vu jewi jef e tvsuli op vsopofef epf xet cioph vsievif gus ov gus e zies epf vjip deni uwis jisi gus vitvt xjodj foehputif NPF.
O'n tu hmef vji nif ot xusloph gus zua Zua tuapf tu qutovowi ov ot ep optqosevoup. Xi emm esi veloph iedj fez ev e voni epf nepehoph iedj tznqzun et ov dunit
Jux vu O dupvedv zua et O qav zua et e dupvedv.
Cz vji xez nz peni ot Kippogis vuu..

 

[Flowerpot]

Jo Kippogis

Nz Nan xet foehputif op Eahatv cav vjiz vjopl tji jet jef NPF topdi metv Tiqvincis. Tji velit pu nift epf vjev ot jis djuodi. Opvisitvophmz jis fudvust teof vjev vjiz xuamf qsumuph jis mogi , cav puv op e xez vjev xuamf cipigov jis et tji ot qsuhsittoph tu raodlmz . Noyif epf tef vonit.

lopf sihesft

Gmuxisquv

 

[rjmlsh]

Zit O dep apfistvepf zuas nan puv veloph nifodevoup , O giim vji teni xez ecuav nz COM xjev cipigov ot ov qsumuphoph mogi xjip vji taggisoph ot tvomm vjisi. Iwisz fez xi mowi op juqi vjev ji't huoph vu hiv civvis iwip vjuahj xi dep tii vji fivisousevoup op jon, O vsz vu sineop qutovowi gus jot genomoit teli epf howi taqqusv xjip piifif.

Nz vjuahjvt esi xovj zua epf zuas nan Kippzyy