AdBlock Detected

Sure, ad-blocking software does a great job at blocking ads, but it also blocks some useful and important features of our website. For the best possible site experience and to help support our community please take a moment to disable your AdBlocker.

advice

  1. N

    need for advice

    hello , my Najib and i have father who's been diagnosed with ALS recently my father had lost his right hand he can't move it any more , he cant walk without falling too , and now the other hand is going down . i have no clue what should i do to help him out . the big problem is that the...
  2. J

    Depressed and Terrified I have ALS

    Hi All, I first want to thank you for the opportunity to voice my concerns as well as my apologies for any inconveniences. To start, my symptoms began a year a ago with some twitching on my stomach. I did a quick google search and Lou Gehrig's Disease came up. At first, I quickly brushed it...
  3. J

    Scared about atypical ALS onset

    Hello I have come accross this forum and am astounded by the positive attitude and supportive nature of those diagnosed with this disease towards others. Not to mention the determination held by so many to continue living as normal a life as possible. I find you all truly inspirational. I...
  4. C

    Questions about Symptoms/EMG

    Thank you all for taking the time to read my post and I would appreciate any advice or knowledge you can pass on. I have read the "before you post sticky". So this all started the the 1st week in Dec, I woke up 1 morning and had a persistent twitch in my left thigh. It prob went on 4-5 days...
  5. D

    My symptoms

    Hello I am a 19 year old male and have had multiple symptoms and have some questions. Before I start I know twitching isn’t a “sign” of als but can go along with it. Started off about 3 weeks ago I just started to feel off as I am pretty well tuned with my body. I’ve had random twitching for...
  6. K

    Thoughts on When to Get Hospice

    My PALS and I have decided to use hospice when the time is right. He uses a Trilogy about 17 hours a day, does not want to be trached or have a PEG. He is able to eat whatever he wants (with the help of water to wash it down), he transfers from scooter to chair/commode but anything he does is...
  7. M

    Parent with C9 ALS

    Hi, My mom recently got diagnosed with ALS and tested positive for the C9 gene. I am going to get tested soon- I am pregnant and due in a couple of months now. But I just need to know either way. I am driving myself crazy thinking that everything is the start of ALS, but I know I am stressed...
  8. S

    Advice appreciated

    Good morning and thank you for accepting me to post on this board. I did not ever think I would be making a post like this. I have read through the stickies and the previous posts regarding twitching and symptoms. I still had a few questions, if you don't mind. I have been to my PCP and...
  9. G

    Help - newly diagnosed

    I'm a bit lost - finally third neurologist confirmed I have ALS. I am using walker now - wondering if I should go ahead and purchase a used wheel chair on Craig's List. Also - in a great deal of pain at night - horrible cramps - given muscle relaxers - still little help. They tell me ALS is...
  10. D

    Concerned about continuing symptoms

    Hello to all, I am concerned about a couple things going on, and hoping you guys would be able to help me, or give me some ideas on my next step. Everything started about a 1.5-2 years ago. I flew up to Montana for the week to spend time with family. Had a good trip until the end when I got...
Top

AdBlock Detected

We get it, advertisements are annoying!

Sure, ad-blocking software does a great job at blocking ads, but it also blocks some useful and important features of our website. For the best possible site experience please take a moment to disable your AdBlocker.

We appreciate your understanding and cooperation!

I've Disabled AdBlock
No Thanks