advice

  1. N

    need for advice

    hello , my Najib and i have father who's been diagnosed with ALS recently my father had lost his right hand he can't move it any more , he cant walk without falling too , and now the other hand is going down . i have no clue what should i do to help him out . the big problem is that the...
  2. J

    Depressed and Terrified I have ALS

    Hi All, I first want to thank you for the opportunity to voice my concerns as well as my apologies for any inconveniences. To start, my symptoms began a year a ago with some twitching on my stomach. I did a quick google search and Lou Gehrig's Disease came up. At first, I quickly brushed it...
  3. W

    Does this sound like ALS?

    I apologize if I accidentally posted this twice. I tried posting earlier but I’m afraid I did something wrong and lost the post because I can’t find it. I’ll try to re-type my sentiments from my earlier post... I went to visit my PCP regarding muscle twitching. I have had twitching for about...
  4. C

    Questions about Symptoms/EMG

    Thank you all for taking the time to read my post and I would appreciate any advice or knowledge you can pass on. I have read the "before you post sticky". So this all started the the 1st week in Dec, I woke up 1 morning and had a persistent twitch in my left thigh. It prob went on 4-5 days...
  5. C

    Really need advice...leg weakness & other symptoms.

    I'm hesitant to post this as I know this is a very serious disease to be anxious over, but I'm very worried. I've been battling a bulging disc in my lower back since 2007 that gets irritated a few times a year. Flash back to middle of February and I aggravated it again, but then again went to...
  6. D

    My symptoms

    Hello I am a 19 year old male and have had multiple symptoms and have some questions. Before I start I know twitching isn’t a “sign” of als but can go along with it. Started off about 3 weeks ago I just started to feel off as I am pretty well tuned with my body. I’ve had random twitching for...
  7. K

    Thoughts on When to Get Hospice

    My PALS and I have decided to use hospice when the time is right. He uses a Trilogy about 17 hours a day, does not want to be trached or have a PEG. He is able to eat whatever he wants (with the help of water to wash it down), he transfers from scooter to chair/commode but anything he does is...
  8. M

    Parent with C9 ALS

    Hi, My mom recently got diagnosed with ALS and tested positive for the C9 gene. I am going to get tested soon- I am pregnant and due in a couple of months now. But I just need to know either way. I am driving myself crazy thinking that everything is the start of ALS, but I know I am stressed...
  9. S

    Advice appreciated

    Good morning and thank you for accepting me to post on this board. I did not ever think I would be making a post like this. I have read through the stickies and the previous posts regarding twitching and symptoms. I still had a few questions, if you don't mind. I have been to my PCP and...
  10. G

    Help - newly diagnosed

    I'm a bit lost - finally third neurologist confirmed I have ALS. I am using walker now - wondering if I should go ahead and purchase a used wheel chair on Craig's List. Also - in a great deal of pain at night - horrible cramps - given muscle relaxers - still little help. They tell me ALS is...
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