1. D

    Emg and twitching

    Hallo everybody, Greetings from Greece 🙂. Sorry for my English, try to understand. One question. How it could be clean the result of emg if I have all the time twiching in legs?? Question two . Curling fingers in foot.. it could be something else of als? The doctors here are awful. I spend...
  2. F

    st pat's day

    Reilly went to trial for armed robbery. The jury foreman came out and announced, "Not guilty." "Oh my!" shouted Reilly. "Does that mean I get to keep the money?"
  3. affected

    aussie research leaps

    Some of you know of Neale Daniher who is a bulbar onset PALS and started the Big Freeze to raise awareness and money to fight MND. This is what is happening with the money at the moment...
  4. B

    C9 carrier with possible symptoms

    Hello everyone! This ended up being a very long post so I I'm going to put a tldr at the end for those of you with limited energy. This is my first post here and as a c9 carrier I will likely be lurking around for a while as it is the most comfort I have found so far. I want to say thank you...
  5. S

    Eighteen, concerned that I may have ALS/MND.

    First, let me start by saying that I am here due to symptoms that have been concerning me for almost month. They are new symptoms that have arisen from other symptoms that have been occurring for over three months now, starting at the end of November. It all started when I had two bowls of...
  6. Bestfriends14


    Hi all, The above protein/energy drink has been touted as a miracle drink for those with ALS. So much so that it claims that out of 250 people, half had symptoms stopped or reversed. It's been heavily pushed on an fb group site where they are now asking for money in order to "gift" two months...
  7. R

    Worried I may have ALS , scared beyond belief , no one to talk to

    Hello everyone , thank u for taking time to read my post , any and all feed back is greatly appreciated , and for all of u suffering with ALS I pray for u all and am starting a campaign to raise and donate money for ALS ! Ok so here is my story , for the past 2-3 years I have suffered with what...
  8. Nikki J

    Making things easier Part 5

    Part 3 is here with links to previous Part 4 is here I like to revisit this topic periodically for several reasons. I do think this is...
  9. K

    Also...Slow or Fast Progression?

    Karen, I must admit I am wondering the same thing...slow, fast, average? I know today is a gift, we should live each day and day by day, but my wondering has to do with decisions that need to be made. My PALS was diagnosed in January 2018 with symptoms becoming very noticeable in August 2017...
  10. L

    The Ferrari

    A hip young man goes out and buys the best car available; a brand new Ferrari 550. It is also the most expensive car in the world, and it cost him $500,000. He takes it out for a spin and stops for a red light. An old man pulls up next to him on a moped. The old man looks over at the...