1. L

    Your avarage DIHALS?

    Dear forum users, I've read over several threads and you are so patient and kind to everyone that visits, I take my hat off to you. I tried my best not to post here, telling myself I am silly for thinking and regret the day I thought it would be a neat idea to Google my symptoms (this should be...
  2. D

    Concerned about continuing symptoms

    Hello to all, I am concerned about a couple things going on, and hoping you guys would be able to help me, or give me some ideas on my next step. Everything started about a 1.5-2 years ago. I flew up to Montana for the week to spend time with family. Had a good trip until the end when I got...
  3. B

    Worried About Symptoms

    Hello! Thank you for allowing me to post this on this forum. I really appreciate any insight! About a year ago, I was diagnosed with a gluten sensitivity, hiatal hernia, and too much stomach acid. I was placed on a medication and a gluten-free diet. After a few weeks, I noticed some twitching...
  4. R

    Newly diagnosed with MND/probably ALS but have questions

    Hi there – I am a 53 year old female and was recently diagnosed with MND, probably ALS, after two abnormal EMG’s in December. I have had blood work for the usual things (all negative) and MRI’s for the spine and brain (also negative). My only presenting functional issue is weakness in my...
  5. J

    Looking for insight.

    Hello everyone. I’m a 30 year old female and would love to get some feedback from people with more knowledge of these things than myself. So this all began at the beginning December. I noticed my hands would go limp for a second and then be fine. I googled and googled and figured maybe it was...
  6. N

    I feel like i lost connection with my own body

    Marry Christmas Everyone! Sorry for the long post and bad English. To know my story you have to know a bit of my background. I was born in the Congo and lived there until age 7. I just turned 30 and things haven't been going to well personally to be honest. As you may or may not know, Congo...
  7. T

    Never wanted to do this.

    Hello, first I just want to say thank you for reading this and for those who are affected with “A” y’all are brave souls and I pray for y’all. I didn’t wanna post on here because I felt like i didn’t need to but I feel like I’m losing my life. I’ve recently lost my job, almost my relationship...
  8. T

    Tobii Dynovox Eye Gaze i series LIKE NEW

    Unfortunately, I lost my husband, March 4,2016; after a 3 year battle with ALS. I was his full time caregiver. We made the mistake of waiting too long to try to get this device, he was not able to use it like we could have if we had it earlier. We used it maybe 4 times, and only a few minutes...
  9. A

    This one’s for the worriers

    Hi all, I’ve been lurking here on and off for a little over a year and have even caved and posted a few threads. I just had my third clean EMG in 12 months. There was a point shortly after the onset of my symptoms where I was convinced I had ALS. I would come home from work and basically take...
  10. V


    The first thing I want to say is thank you for having a place like this, where people can go to voice their concerns. For that past 3 months, I've had disequilibrium. If you don't know me, you can't tell, but I feel off balance when I walk. It becomes especially pronounced if I stand with my...
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