PaddyIrish
New member
- Joined
- Feb 11, 2025
- Messages
- 2
- Reason
- Loved one DX
- Diagnosis
- 06/2024
- Country
- UK
Hi sister, 65, was diagnosed in June last year. Now I'm terrified
I'm a 62M with a past history of mild health anxiety. In recent years I've also had at times bad neuropathic pain in my feet.
All my life I have had the very occasional twitching. When i was a kid, i called it bubbly skin. It never bothered me.
But in the last three weeks it has gone wild. I have semi-permanent and very visible twitching in my left calf. My right calf is next worst, then I get a fair bit in my lower butt and biceps.
It's worst when resting, and at night, when I've also had the odd mild cramp.
I was doing large amounts of exercise - gym 5x a week, plus tennis 3x a week.
Alongside the twitching I've had a lot of muscle pain over my shoulders and neck for the past two weeks, plus fatigue. I also get shooting pains down my left leg, often when walking. I've stopped exercising.
My sister was diagnosed with ALS 9 months ago. She had these early symptoms - slurred speech, grip issues, muscle weakness, plus twitching and severe cramps. I'm one of 7 kids (she is the 3rd, me 5th) and none have had ALS, and there is no known history of it in the family.
I saw a neurologist just 3 weeks ago, not for this but a long-delayed appointment for my neuropathy. I didn't have the twitches or cramps then. I told him about my sister, and he said he was 99% certain I did not have ALS. But he wanted a nerve conduction analysis. I've since written to say I'm having severe fasiculations and mild cramps, asking for an EMG. no reply yet.
I'm in a severe rabbit hole, diagnosing myself with the worst, even though I don't have firm evidence of muscle weakness or atrophy. Just today I checked my tongue and thought I could see indents, plus one twitch.
I told my partner 2 months ago, and the neurologist, that I thought I had mildly slurred speech. They both said I don't.
Any thoughts? Press the neurologist for an emergency EMG/NCA?
I can't face quizzing my sister, who lives in another country, about her early symptoms. She has her own deeply challenging issues without me whinging about mine.
Also, are there any links between neuropathy and twitching?
I'm a 62M with a past history of mild health anxiety. In recent years I've also had at times bad neuropathic pain in my feet.
All my life I have had the very occasional twitching. When i was a kid, i called it bubbly skin. It never bothered me.
But in the last three weeks it has gone wild. I have semi-permanent and very visible twitching in my left calf. My right calf is next worst, then I get a fair bit in my lower butt and biceps.
It's worst when resting, and at night, when I've also had the odd mild cramp.
I was doing large amounts of exercise - gym 5x a week, plus tennis 3x a week.
Alongside the twitching I've had a lot of muscle pain over my shoulders and neck for the past two weeks, plus fatigue. I also get shooting pains down my left leg, often when walking. I've stopped exercising.
My sister was diagnosed with ALS 9 months ago. She had these early symptoms - slurred speech, grip issues, muscle weakness, plus twitching and severe cramps. I'm one of 7 kids (she is the 3rd, me 5th) and none have had ALS, and there is no known history of it in the family.
I saw a neurologist just 3 weeks ago, not for this but a long-delayed appointment for my neuropathy. I didn't have the twitches or cramps then. I told him about my sister, and he said he was 99% certain I did not have ALS. But he wanted a nerve conduction analysis. I've since written to say I'm having severe fasiculations and mild cramps, asking for an EMG. no reply yet.
I'm in a severe rabbit hole, diagnosing myself with the worst, even though I don't have firm evidence of muscle weakness or atrophy. Just today I checked my tongue and thought I could see indents, plus one twitch.
I told my partner 2 months ago, and the neurologist, that I thought I had mildly slurred speech. They both said I don't.
Any thoughts? Press the neurologist for an emergency EMG/NCA?
I can't face quizzing my sister, who lives in another country, about her early symptoms. She has her own deeply challenging issues without me whinging about mine.
Also, are there any links between neuropathy and twitching?
