Bulldog29
Active member
- Joined
- Nov 6, 2015
- Messages
- 38
- Reason
- DX UMND/PLS
- Diagnosis
- 06/2015
- Country
- US
- State
- TX
- City
- Mansfield
Haven't been on here in a while (took some advice from some other members and just enjoyed the holidays) but I wanted to give an update on my situation and my original thread is closed now. Anyway, was seen this week by Dr. Elliott (Bill's doctor) at UTSW Neuromuscular dept. He wasn't as ready to give me a diagnosis as my first neuro but said he did see a lot of signs consistent with PLS. He ordered some new blood work and I have an EMG scheduled in a couple of weeks. One of the things he told us was that the EMG is used to look for ALS and a clean EMG would mean that only Upper Motor Neurons were involved, at least that's the way I understood him.
He walked me through a lot of the same tests as before in the exam room, checking strength in my arms, legs, feet, etc. One thing I hadn't been tested on before was how fast I could move my tongue from side to side and top to bottom. I didn't do so well on those and I guess I never realized it was an issue but he was concerned about it either way.
He also told me that the Baclofen I was originally prescribed needed be taken daily and at a much higher dose to have any chance of being affective, something I didn't know. I thought it was for occasional use.
I walked out with a lot more questions than answers but at least now I feel I have found the right help.
He walked me through a lot of the same tests as before in the exam room, checking strength in my arms, legs, feet, etc. One thing I hadn't been tested on before was how fast I could move my tongue from side to side and top to bottom. I didn't do so well on those and I guess I never realized it was an issue but he was concerned about it either way.
He also told me that the Baclofen I was originally prescribed needed be taken daily and at a much higher dose to have any chance of being affective, something I didn't know. I thought it was for occasional use.
I walked out with a lot more questions than answers but at least now I feel I have found the right help.