olly
Extremely helpful member
- Joined
- Jan 10, 2008
- Messages
- 2,743
- Reason
- PALS
- Diagnosis
- 11/2007
- Country
- uk
- State
- uk
- City
- uk
today i had my oral specialist appointment,its been a long day.
my appointment was made for the hospital in the next city,we set off at 11.30am and it took over an hour to get there,had lunch and made our way to the hospital.
got there for 2.45 (appointment was for 3.30pm) but got in to see the doctor early which was good because i had alot of test done and we did not get out till nearly 5pm.
ok, i was told i could have been seen at my local hospital as they do have a oral specialist unit there ,they are going to send the test results ect to my local hospital for treatment.
basically they say the problems are due to hyperactivity of the jaw and spasms.
at my next appointment at my local hospital they are going to fit me with some kind of jaw brace/splint and also fit me with a mouth guard on a night to stop my teeth clashing if i have spasms.
will also be seen in the myofacial clinic about the hemifacial spasms.
all good news but i did get some unexpected bad news................... they found a cyst.
my scans of my jaw showed i have a upper jaw cyst which is quite large and has been growing for some years though i dont have any symptoms,they said i need surgery as it will just keep growing and it can even break the jaw..........i asked if it could be that thats causing the hemifacial spasms but they said no.......wrong nerves so unrelated.
good job i had this appointment otherwise they would not have found the cyst but for me surgery is not good as i dont do too well after.
now at least i am getting help with the lower jaw though i know now it is umn and they can only help not cure.
so a mixture of good and bad news.
i am sooo tired ,stiff and in pain and in my pj's at 7.30pm.
my appointment was made for the hospital in the next city,we set off at 11.30am and it took over an hour to get there,had lunch and made our way to the hospital.
got there for 2.45 (appointment was for 3.30pm) but got in to see the doctor early which was good because i had alot of test done and we did not get out till nearly 5pm.
ok, i was told i could have been seen at my local hospital as they do have a oral specialist unit there ,they are going to send the test results ect to my local hospital for treatment.
basically they say the problems are due to hyperactivity of the jaw and spasms.
at my next appointment at my local hospital they are going to fit me with some kind of jaw brace/splint and also fit me with a mouth guard on a night to stop my teeth clashing if i have spasms.
will also be seen in the myofacial clinic about the hemifacial spasms.
all good news but i did get some unexpected bad news................... they found a cyst.
my scans of my jaw showed i have a upper jaw cyst which is quite large and has been growing for some years though i dont have any symptoms,they said i need surgery as it will just keep growing and it can even break the jaw..........i asked if it could be that thats causing the hemifacial spasms but they said no.......wrong nerves so unrelated.
good job i had this appointment otherwise they would not have found the cyst but for me surgery is not good as i dont do too well after.
now at least i am getting help with the lower jaw though i know now it is umn and they can only help not cure.
so a mixture of good and bad news.
i am sooo tired ,stiff and in pain and in my pj's at 7.30pm.