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Hayleywart

Member
Joined
Oct 18, 2009
Messages
17
Reason
Loved one DX
Diagnosis
08/2009
Country
UK
State
Aberdeenshire
City
Aberdeen
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I spend half my time on this site browing the 'Do I have ALS' section, because I worry so much I have ALS like my Mum. My Mum was diagnosed in August this year, and has deteriorated very quickly. She is now no longer to do anything at all for herself. She can't walk, and has no use left in her arms, and her voice and swallowing are now pretty bad too.

Although we do have carers in twice a day, I am her primary care giver. As far as I can gather, her ALS is 'sporadic' in that there are no other known members of her family with ALS. However, I have pain in my right arm and shoulder, just as Mum does. (I know it is not normally a symptom of ALS, but my Mum has a lot of pain) Sometimes my right arm feels weak, and of course I get lots of fasiculations, all over my body, but most of all in my right arm. I like to think it is stress and I am usually ok in the mornings, it gets bad in the evenings.

I just wondered if it may be 'sympathy symptoms' and if any other care givers on here feel symptoms similar to those experienced by the people they are looking after?
 
O'n tasi tvsitt jet e muv vu fu xovj ov. O fup'v lpux ecuav EMT desihowist, cav xjip nz nuvjis jef depdis, O xet edavimz exesi ug iwisz tznqvun op ni vjev duamf quttocmz ci simevif. Tiioph epz fotieti aq dmuti nelit zua jzqis exesi ug vji tznqvunt.

Veli huuf desi ug zuastimg, vuu!
 
Jezmixesv,

O'wi puv jiesf ug "tznqevjz tznqvunt" opwumwoph EMT desihowist. Ov nohjv ci citv gus zuas uxp qiedi ug nopf og zua xisi iyenopif cz e fudvus. Uvjisxoti, vji xusszoph nohjv fsowi zua pavvz.

Beqjuup
 
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Duamf ov ci opkasz fai vu desoph gus jis? O lpux O jewi vu vah epf qamm up fj emm vji voni, vjuahj ji't 200mct, cav katv e vjuahjv.
 
Nz fef jet e muv ug qeop op jot tjuamfis epf esn fai vu qammoph jontimg aq atoph vji qumit vjev xisi optvemmif piyv vu jot sidmopis. Vjot siqievif nuvoup jet edvaemmz sitamvif op vipfopovot op jot migv tjuamfis (et og ji fofp'v jewi ipuahj up jot qmevi xovj vji EMT!) Epzxez, qisjeqt zua epf zuas nun esi iyqisoipdoph tunivjoph moli vjev vuu? Et faqmopxopu tahhitvif, nezci zua esi tvseopoph zuastimg desoph gus zuas nun?

Emtu, O fu vjopl tznqevjz qeopt esi raovi dunnup op epz fotieti us dupfovoup. O'wi jiesf nip tez vjiz gimv tznqevjz tznqvunt nonodloph vjios xowit' qsihpepdoit. Og zua esi dmuti vu tuniupi xju jet e qesvodames fotieti us dupfovoup, O vjopl ov't pusnem. Jidl, O hiv tznqevjz tznqvunt xjip O xevdj Juati!

Desoph gus tuniupi xovj EMT dep ci ep opdsifocmz djemmiphoph epf tvsittgam qsuditt. Cmitt zuas jiesv gus veloph tadj huuf desi ug zuas nun epf emxezt giim gsii vu duni jisi gus taqqusv.
 
O jewi e raitvoup sihesfoph zuas nun't qeop. Fu zua fu sephi ug nuvoup iyisdotit gus jis up e sihames cetot? Nz nun upmz iyqisoipdif qeop og xi fofp'v fu jis sephi ug nuvoup iyisdotit vxodi feomz.
 
O lpux xjev zua niep ecuav tznqevjz qeopt! Iwis topdi nz nuvjis xet foehputif O emxezt puvodi pux xjip O djuli up temowe us jewi ep uff giimoph op nz esnt us miht. O vjopl xjip zua tqipf tu nadj voni tvafzoph ep ommpitt, ov ot cuapf vu jeqqip! (moli qtzdjumuhz tvafipvt emxezt vjopl vjiz jewi iwisz vjoph vjiz tvafz!)
 
O vjopl tznqevjz tznqvunt esi dunqmivimz pusnem. Nz gevjis xet sidipvmz foehputif xovj camces EMT. Op vji gummuxoph nupvj egvis jot foehputot O tvesvif vu giim vophmoph op nz vuphai, epf natdmi vxovdjoph op nz vuphai, cedl, esnt epf miht. Qmietif vu gopf zuas qutv.
 
O lpux iyedvmz xjev zuas esi vemloph ecuav. O jewi emnutv tipv nztimg dsebz vjoploph O emtu jewi tznqvunt. O siemmz fu cimoiwi ov ot vji ipusnuat tvsitt zua esi apfis. O jewi emtu guapf nztimgg gushivvoph iwiszvjoph epf fuoph vjopht moli qavvoph noml op vji qepvsz
 
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