voice

  1. J

    Depressed and Terrified I have ALS

    Hi All, I first want to thank you for the opportunity to voice my concerns as well as my apologies for any inconveniences. To start, my symptoms began a year a ago with some twitching on my stomach. I did a quick google search and Lou Gehrig's Disease came up. At first, I quickly brushed it...
  2. A

    Terrified of bulbar

    First I would like to thank everyone in this community that is being very supportive because I know your time is very valuable. I am a 25 year old male. It has been an ongoing battle with my mind for the past five years because ever since I turned 20 I would have twitches all over my body...
  3. K

    ALS symptoms?

    Hi all, I’ve been lurking for a while but have been hesitant to post because I don’t want to upset anyone by jumping the gun. I’ll try and make this short but I just need some insight into what I’m experiencing. It started with twitching that I noticed going on two months ago. The twitches...
  4. N

    Could this be ALS?

    Good evening. After reading the stickies, I am still left with some questions. Here’s where I am at— 1. I have had body-wide twitching for about 6 weeks. It seems to be mostly in my legs now, with some in my face , back, and arms (not often). The twitching occurs on both sides. Some days...
  5. ShiftKicker

    For Canadians interested in Radicava

    The CADTH (independent advisory body Health Canada consulted with) has published its recommendations on Edaravone use in Canada based on their research and consultations with ALS patients, caregivers and other health professionals. From ALS Canada The report can be found here...
  6. M

    Ck Up, fasciculation and cramping

    8 months ago tight pain in both hips. I’ve had Mri of all parts of my body nothing showing 4 months ago pain in mid back around to ribs when standing gets worse as day goes on. Mood has been depressed I’ve never felt like this in my life. My voice is also super hoarse I can’t sing anymore...
  7. M

    EMG in the morning

    I’m having an EMG tomorrow in Houston. I’m obviously scared. 8 months ago I started having tight pain in hips, 2 months later mid back pain when standing gets worse as day goes on. 4 weeks ago legs start twitching all under skin feels weird. Mood has been depressed I’ve never felt like this in...
  8. J

    Can't control my fear.

    Hi everyone. I know this isn't an anxiety or fear forum. But I have some concerns that I am really worried about and confused about due to Google. First off, I'm so sorry for anyone going through this disease- I don't want anyone to be wasting their time reading this because I'm not worth it...
  9. M

    concern over recent symptoms

    Hi all, First of all, thanks in advance to anybody who takes the time to reply to my post. I am a 32-year-old caucasian man currently living in Los Angeles. My symptoms started about 8 months ago with some intermittent muscle twitching that I noticed on and off in my neck, biceps, legs, all over...
  10. M

    Concern over recent symptoms

    Hi all, First of all, thanks in advance to anybody who takes the time to reply to my post. I am a 32-year-old caucasian man currently living in Los Angeles. My symptoms started about 8 months ago with some intermittent muscle twitching that I noticed on and off in my neck, biceps, legs, all...
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