Hayleywart
Member
- Joined
- Oct 18, 2009
- Messages
- 17
- Reason
- Loved one DX
- Diagnosis
- 08/2009
- Country
- UK
- State
- Aberdeenshire
- City
- Aberdeen
I spend half my time on this site browing the 'Do I have ALS' section, because I worry so much I have ALS like my Mum. My Mum was diagnosed in August this year, and has deteriorated very quickly. She is now no longer to do anything at all for herself. She can't walk, and has no use left in her arms, and her voice and swallowing are now pretty bad too.
Although we do have carers in twice a day, I am her primary care giver. As far as I can gather, her ALS is 'sporadic' in that there are no other known members of her family with ALS. However, I have pain in my right arm and shoulder, just as Mum does. (I know it is not normally a symptom of ALS, but my Mum has a lot of pain) Sometimes my right arm feels weak, and of course I get lots of fasiculations, all over my body, but most of all in my right arm. I like to think it is stress and I am usually ok in the mornings, it gets bad in the evenings.
I just wondered if it may be 'sympathy symptoms' and if any other care givers on here feel symptoms similar to those experienced by the people they are looking after?
Although we do have carers in twice a day, I am her primary care giver. As far as I can gather, her ALS is 'sporadic' in that there are no other known members of her family with ALS. However, I have pain in my right arm and shoulder, just as Mum does. (I know it is not normally a symptom of ALS, but my Mum has a lot of pain) Sometimes my right arm feels weak, and of course I get lots of fasiculations, all over my body, but most of all in my right arm. I like to think it is stress and I am usually ok in the mornings, it gets bad in the evenings.
I just wondered if it may be 'sympathy symptoms' and if any other care givers on here feel symptoms similar to those experienced by the people they are looking after?