chrisroski
Active member
- Joined
- Apr 12, 2012
- Messages
- 93
- Reason
- PALS
- Diagnosis
- 01/2012
- Country
- US
- State
- Pa
- City
- Philadelphia
I was diagnosed last Jan with bulbar ALS. I was doing pretty good, had tube put in in June. Recently had Botox done for saliva and now I'm having problems sleeping, feel like thick junk stuck in my throat. I toss and turn all night long. Sleep with two pillows almost in a sitting position. Choking during the night . I use a nebulizer twice a day and have suction machine. Also, my face is sunken in, and my bottom lip just hangs Botox doctor said he can't do anything for that. Is there anything that can be done. My eyes are sensitive to light all of a sudden and feel like there not open all the way. . I look,horrible and feel horrible. Been getting dizzy when I stand up. Appt with neuro the 26th, seeing if I can move that up. You people know more than me, but I think maybe I need a bipap machine. Very lethargic, also I'm crying non stop, think that is emotional liability, although home situation is not great, as you know from previous posts. Still working on that. I know it is wishful thinking, but Im Starting to wonder if this is something other than ALS. I don't understand why my face looks like it's hanging down? Anybody with bulbar als have these symptoms? Be glad to hear from you.