I just wanted to stop by and wish you and your family a Merry Christmas. We are all going to see my dad after Christmas for a few days. We are kind of going at staggered times. I will be there from the 2-8th. I'm really anxious to see him. Kim
Sadie, thanks for posting. We are coping pretty well. I have great support from friends, neighbors, family and church family. I usually browse because there are many many great ideas for things that we can use and try. Again, thank you
just stopping to say hi! my computer has been at the shop. Son got married this month too, and the HS graduation. been crazy you know what I mean. Thanks so much for your PMs, I am sad to say we have a lot in common...
that means that he would see it, so I'll just think about it for a day or so. Things not so good here again today, he announced that when he needs full care he will not stay here but have himself admitted somewhere as he won't be responsible for me having to care for him and not be able to work and possible financial hardship of that. devastating for me, no input of mine considered - he feels it is about the only decision of control he can make and says he is adamant (of course who knows if he could change his mind in a day or a month)
Hi sadiemae, that would truly be so helpful. Will it show on my timeline that I joined and am a member of the group? I am on facebook but don't do a lot there and if I do, I notice that he sees straight away ...
hi sadie. first i would like to give you my appreciation for replying on my thread. you're awesome.
i noticed that you mentioned the twitching is a later sign of ALS, and that twitching would be accompanied by "profound weakness", which would be noticed from the incompetency of holding a coffee cup. however, you also mentioned that you and your husband seemed to notice the twitches first. compared to about 4-5 months ago, before i noticed anything wrong, i would consider my weakness to be "profound". the twitching started in my calf, then, within a week or 2, progressed to body-wide(excluding the face/tongue). the facial and tongue twitching seems to have begun a week ago, which is 3 1/2 months into the whole misfortune. PLEASE write me back when/if you have the free time. thank you again!