I think its over...
- Status
patricia1
Very helpful member
- Joined
- Sep 18, 2006
- Messages
- 1,171
- Reason
- PALS
- Diagnosis
- 7/1999
- Country
- US
- State
- newjersey
- City
- lopatcong NJ
That is wonderful News You are one of the lucky ones Hope they put you on antibiotic as soonas possible I never thought lymes was a problem in Poland I hear alot about it here in New Jersey
Thank Yopu Pat, Im still waiting for letter from DNA Laboratory because I just called them and thats why I know.I think when I receive my DNA test I will have to go to hospital an lyme specialist.Lyme is a big problem in Poland, but I dont remember any thick on me.I hope its only Lyme.
Cindy, Lyme is hard to diagnose because the most popular test in Poland ELISA is not a good one, it only sometimes detects Lyme in your blood.So i had a PCR Real Time test, it is a special test from your DNA and it is 100% sensitive.By the way, docs in Poland dont think about Lyme sa often as they should.Wish you all nice weekend.
Hi Anna, our tests (and docs) here for Lyme aren't that great either. The docs usually draw one, either the elisa or one of the other no good tests and if they come back negative they drop it. When I researched Lyme I found that they should try all the different tests and even a spinal tap to make sure it isn't lyme. I am really glad you found a doc to get a better test. These docs should look for it faster, because the longer a person waits to treat Lyme, the harder it is to treat and the more damage it does. Some people have Lyme go so far that they get worse with treatment before they start to get better, and they have to be treated forever! So, hopefully you can get them to move fast and get your treatment started so you don't suffer any further problems. Good luck Anna. I am so glad that you got a diagnosis. Leslie
Leslie, I ve done the test by myself, for my own money (its expensive).Every doc said "no it is not Lyme"-they are not too clever.So sometimes you have to search by your own for the answer.Even my neuro said"no, it is not Lyme".But I called her yesterday and told about my Lyme test.She said"oh,so u have the answer.Lyme can cause that kind of thing".So, now they are clever - LOL.
Jamiet
Senior member
- Joined
- Nov 27, 2006
- Messages
- 616
- Reason
- Learn about ALS
- Country
- US
- State
- Louisiana
- City
- Carencro
Oh my god
Anna,
Oh my god, i'm just reading your entirety of posts and have exactly the same issues, mine going back 10 years...... Everything form the tongue, to jaw, to legs, etc....WOW
I've just sent my blood to IGENEx for testing.
Rgds,
Jamie
Anna,
Oh my god, i'm just reading your entirety of posts and have exactly the same issues, mine going back 10 years...... Everything form the tongue, to jaw, to legs, etc....WOW
I've just sent my blood to IGENEx for testing.
Rgds,
Jamie
Jamiet,
good thing You have done.Lyme is a big problem and as far as I know that laboratory is making the best test in US.have you done PCR test?Im starting my therapy after Easter, right now Im taking doxycycline, but this is not good for chronic Lyme.I had to find the doc. who is treating Lyme very agressive, because the rest of the docs are always giving only doxycycline.If you want Leslie and jamiet, send me private massage and I will give you details which abx I will take.
good thing You have done.Lyme is a big problem and as far as I know that laboratory is making the best test in US.have you done PCR test?Im starting my therapy after Easter, right now Im taking doxycycline, but this is not good for chronic Lyme.I had to find the doc. who is treating Lyme very agressive, because the rest of the docs are always giving only doxycycline.If you want Leslie and jamiet, send me private massage and I will give you details which abx I will take.
Jamiet
Senior member
- Joined
- Nov 27, 2006
- Messages
- 616
- Reason
- Learn about ALS
- Country
- US
- State
- Louisiana
- City
- Carencro
leslie,
You must find a lab that will draw your blood, separate it (to get serum) and give it back to you, then, you DHL / FEDEX it to Igenex labs in California. go to igenex.com, print the test req. forms, get your dr. to sign them. It will cost $450.
Do the 6050 test and get the test requirements also, it will tell you how many tubes of blood and serum needed and the shipping requirements. The 6050 test includes all, including the DNA test.
don't let your Dr tell you to send it to their labs
Good luck
Rgds,
Jamie
You must find a lab that will draw your blood, separate it (to get serum) and give it back to you, then, you DHL / FEDEX it to Igenex labs in California. go to igenex.com, print the test req. forms, get your dr. to sign them. It will cost $450.
Do the 6050 test and get the test requirements also, it will tell you how many tubes of blood and serum needed and the shipping requirements. The 6050 test includes all, including the DNA test.
don't let your Dr tell you to send it to their labs
Good luck
Rgds,
Jamie
- Status
