Hello corvo.
I am still in the process of finding out what is wrong. I do understand the fear, but I believe If we search or read enough we always find similarities with others.
There are a few things my doctor is looking at and I still have more
Testing to do. Being patient is hard, but we have no choice. Continue to work with your doctors. I finally found one that I like and continues to work with me. My next step is a geneticist as I have a mutation of unknown significance of SPG 11 &
SPG9A.
Good luck to you.
I am still in the process of finding out what is wrong. I do understand the fear, but I believe If we search or read enough we always find similarities with others.
There are a few things my doctor is looking at and I still have more
Testing to do. Being patient is hard, but we have no choice. Continue to work with your doctors. I finally found one that I like and continues to work with me. My next step is a geneticist as I have a mutation of unknown significance of SPG 11 &
SPG9A.
Good luck to you.