petlover
Active member
- Joined
- Dec 9, 2012
- Messages
- 59
- Reason
- Learn about ALS
- Country
- US
- State
- UT
- City
- Salt Lake City
The clinic called today to let me know that my file had been routed to the entirely wrong area of clinical neurosciences, resulting in the first appointment in April (which, BTW, wasn't even with the right guy!). After my 5 messages I've left this week, they finally got my file to the ALS doc who reviewed and had his assistant call and schedule me for a week from today! YAY!
So, I am super glad that I double checked and stayed on top of it. The assistant said to plan on 4 hours, but it may be longer, so I'm assuming they'll do the EMG etc that day, so I may have some answers as early as next week!
Here's another symptom type question though (hope I'm not annoying anyone . . . ): When I saw the neurologist 2 weeks ago, my left foot was obviously very weak (couldn't balance, couldn't lift front of it, etc). I couldn't really walk on toes on either foot, but the right one seemed pretty good otherwise. Now it is quickly becoming as wobbly as the left. There's no way ALS would move that quickly into the other foot, is there? I mean, wouldn't it just continue up my left leg before starting on the right? Doesn't this seem more like a neuropathy or autoimmune thing? I know none of you can tell me these things, but I'm taking this as a good development!
So, I am super glad that I double checked and stayed on top of it. The assistant said to plan on 4 hours, but it may be longer, so I'm assuming they'll do the EMG etc that day, so I may have some answers as early as next week!
Here's another symptom type question though (hope I'm not annoying anyone . . . ): When I saw the neurologist 2 weeks ago, my left foot was obviously very weak (couldn't balance, couldn't lift front of it, etc). I couldn't really walk on toes on either foot, but the right one seemed pretty good otherwise. Now it is quickly becoming as wobbly as the left. There's no way ALS would move that quickly into the other foot, is there? I mean, wouldn't it just continue up my left leg before starting on the right? Doesn't this seem more like a neuropathy or autoimmune thing? I know none of you can tell me these things, but I'm taking this as a good development!