Jrzygrl
Senior member
- Joined
- Feb 14, 2017
- Messages
- 751
- Reason
- Lost a loved one
- Diagnosis
- 08/2014
- Country
- US
- State
- NJ
- City
- X
Laurie,
All our legal paperwork is in order. I can't speak for Lenore, but we still have things that are holding us back from living life to its fullest. Some are from a not so accessible world, and some are somewhat self imposed.
For example, DD got her first apartment. Her job is in one of the most expensive areas of the country. The choice came down to renting a first floor apartment in a scketchy area or a second floor condo in a safer area. No brainer, but we can't visit. DS is at college and lives on the 3rd floor of an older dorm with no elevator. The school makes accommodations for students with disabilities, but cannot make them for students with disabled family members. Friends have been so gracious to invite us to celebrations of various events. Most have been held at their homes. They don't own accessible homes, so we haven't been able to attend.
DH is wheelchair bound and can no longer stand. He will not travel by plane. Our last flight, when he could still walk a short distance, turned a 2 hour trip into a 12 hour fiasco, so he is not willing to take a chance like that again and I can't blame him. He also has lost the use of his arms, so I now feed him his meals. He will not go out to eat because he feels like he'll be on display. I can't ask him to put himself in a situation where he'd be that uncomfortable, so we always eat at home. These limitations are self-imposed, but he has lost so much, I will not push.
I'm not looking for grand adventures anymore. Just what most would consider a "normal" day would be a blessing.
Sorry, didn't mean to hijack your thread Lenore.
All our legal paperwork is in order. I can't speak for Lenore, but we still have things that are holding us back from living life to its fullest. Some are from a not so accessible world, and some are somewhat self imposed.
For example, DD got her first apartment. Her job is in one of the most expensive areas of the country. The choice came down to renting a first floor apartment in a scketchy area or a second floor condo in a safer area. No brainer, but we can't visit. DS is at college and lives on the 3rd floor of an older dorm with no elevator. The school makes accommodations for students with disabilities, but cannot make them for students with disabled family members. Friends have been so gracious to invite us to celebrations of various events. Most have been held at their homes. They don't own accessible homes, so we haven't been able to attend.
DH is wheelchair bound and can no longer stand. He will not travel by plane. Our last flight, when he could still walk a short distance, turned a 2 hour trip into a 12 hour fiasco, so he is not willing to take a chance like that again and I can't blame him. He also has lost the use of his arms, so I now feed him his meals. He will not go out to eat because he feels like he'll be on display. I can't ask him to put himself in a situation where he'd be that uncomfortable, so we always eat at home. These limitations are self-imposed, but he has lost so much, I will not push.
I'm not looking for grand adventures anymore. Just what most would consider a "normal" day would be a blessing.
Sorry, didn't mean to hijack your thread Lenore.