Doubt anyone reads this things. Just wanted to mention my Dad passed.
Came to this forum a few times for a help and it was much appreciated. His ALS moved so quickly we were unable to get him any of the benefits he deserved for being a veteran. I tried my best for my Dad. My heart goes out to...
Hello, I am posting on behalf of my Dad. He was diagnosed in June, rapid progression, and he is already in a nursing home living out his last days.
As his muscles have weakened, he is unable to move his neck. Because of that, his head falls down and to the side (the side of his ventilator...
Veterans with ALS need to know that in order to get their special monthly compensation (SMC) increased as their condition worsens they will need to get a Disability Benefits Questionnaire (DBQ) filled out by a doctor of your choice or submit for a C&P exam arranged by the VA.
Then lose it in the car!
My mom is in a nursing home I need to get her transferred to another ( not urgent, another story I just dislike the place muchly). Brian is progressing because ALS moves just one way as we know. Next up is more homecare hours, next up is the simple reality that this...
Hi. I am new here. My sister was diagnosed in 2011. She has been in a nursing home for the last three years. We live 6,000 miles apart. The last time I was able to visit was four years (and one college kid expenses) ago. The nursing home is very good and paid for by her disability pension...
I was wondering if any of you guys had any suggestions on extending a hospital stay. My dad is currently nearing the final stages. He is completely bedridden and has been on a trach for about six weeks.
After the trach was done, Kaiser sent him to a subacute facility. However, the...
On March 28 a little more than four months ago i started experiencing fatigue in my neck. I also noticed that solid and dry food seemed to get stuck in my throat after i swallowed and was very uncomfortable. As time went on i noticed i would wake up with my limbs feeling very weak, but it would...
My 70 year old brother in law went from having drop foot to being on a ventilator in about three months! He had been seeing doctors during the progression, but ALS wasn't diagnosed until late April. After three weeks in ICU, he was moved to an acute care
hospital where has spent two weeks...
I'm just curious as to how others have handled home healthcare in the last stages of ALS. My sister receives Hospice care, but they only come out 3 times a week to bathe her, and her needs continue to increase, so Hospice told my brother-in-law that he must hire home healthcare providers for at...