Plumeria84
Active member
- Joined
- Jul 22, 2011
- Messages
- 42
- Reason
- CALS
- Diagnosis
- 08/2009
- Country
- US
- State
- FL
- City
- Palm Coast
Hi everyone. I haven't been on in a really long time. Just hiding out l and trying to make the best of it.
But I've reached my point of exhaustion. Mentally and physically.
My question is , is there ANYTHING out there to help people who are dealing with ALS.
I just don't understand how someone is suppose to be a caregiver 24/7, work, take care of child, home etc... it's too much.
I've been doing this for 5years now and it's all finally caught up.
It takes everyone ounce of energy I have to get myself outta bed each day. And truthfully, if it wasn't for our young son, I might not.
Even if I were to quit my part-time from home job, we still do not qualify for any assistance (food stamps, Medicare/Medicaid etc) so that would leave myself & our kid uninsured. If I understand correctly the cut off is $1600 for a family of 3. And that SS payment are counted as income when it comes to that.
Am I missing anything ? How do people do this ? Are there any programs out there that ALS association doesn't tell you about.
Sorry I'm all over the place , I'm so exhausted and can't focus on anything - and doesn't seem like any programs try to make it easy to understand if you qualify for anything or not.
Thanks
But I've reached my point of exhaustion. Mentally and physically.
My question is , is there ANYTHING out there to help people who are dealing with ALS.
I just don't understand how someone is suppose to be a caregiver 24/7, work, take care of child, home etc... it's too much.
I've been doing this for 5years now and it's all finally caught up.
It takes everyone ounce of energy I have to get myself outta bed each day. And truthfully, if it wasn't for our young son, I might not.
Even if I were to quit my part-time from home job, we still do not qualify for any assistance (food stamps, Medicare/Medicaid etc) so that would leave myself & our kid uninsured. If I understand correctly the cut off is $1600 for a family of 3. And that SS payment are counted as income when it comes to that.
Am I missing anything ? How do people do this ? Are there any programs out there that ALS association doesn't tell you about.
Sorry I'm all over the place , I'm so exhausted and can't focus on anything - and doesn't seem like any programs try to make it easy to understand if you qualify for anything or not.
Thanks