financial

  1. Tomswife

    Grants to help with caregiver costs

    Some of the ALS ASSOCIATION Chapters have grant money to help PALS/CALS with the cost of caregiving. We received $2K from the NY Metro chapter. There was an application, and I had to submit detailed invoices that show per diem charges. It is possible that other ALS foundations can support...
  2. D

    trach questions

    I would like to hear from any pALS or cALS who are living with a trach. I understand the medical and technical side of it, but I am interested in hearing the nitty-gritty ramifications of living with all of that at home. The real stuff. How do you staff, are there lay person family members...
  3. T

    Worried about the future

    Hi, yes I was doing better. Now, I’m so worried about the financial security of our family. Before this, we had a plan for retirement, college, etc. My husband earns almost twice what I make. How are we going to survive when he can’t work? And, how will we make it once he is gone? He has life...
    • Thomas933
    • Thread
    • disability family financial insurance life life insurance medical power work worried
    • Replies: 3
    • Forum: Current caregivers
  4. Kristina1

    Trilogy cost

    A cost question here. When they came out they told me my insurance is paying 85% and I'm paying 15%. My 15% comes out to 178/month. That means insurance is paying $1008/month, and together we pay $1186/month. I asked for how many months until we own it, and she said no, no chance to own only...
  5. A

    Introduction

    Hi everyone, This is my first post. My father was diagnosed with ALS at the end of June. He is 73-years-old, and the whole family has been in shock because nobody had any clue something this devastating was going on with his health. This was truly a shock to the system. Of course, we are still...
    • AerynRox
    • Thread
    • advice als diagnosed diagnosis family father financial health introduction reading ssdi
    • Replies: 6
    • Forum: Current caregivers
  6. Buckhorn

    Sorry to join this club ...

    So, this is my first post here since Dave died. It is now 3 weeks since his death. We had a beautiful memorial service / "celebration of life". I know Dave would have been mortified at what a fuss I made. I just wanted to celebrate the life of the man I loved so much. Funerals & memorial...
    • Buckhorn
    • Thread
    • cold cry death diagnosis financial foot heart hope life memorial night wanted
    • Replies: 24
    • Forum: Past caregivers
  7. J

    Maybe ALS?

    Hi guys, My name is Julia, I have not been diagnosed with ALS, but have had these symptoms. In Late April I started having clumsiness and heaviness in my legs where it felt like I had elephant feet. Initially I had some numbness from my chin to my knees ( I know this is not a typical symptoms...
    • jj93
    • Thread
    • age als als? babinski's back brain diagnosed family financial health heaviness hope mri muscle neurologist pain problems stiffness symptoms symptoms of als twitching work worried wrist
    • Replies: 6
    • Forum: Could this be ALS?
  8. S

    Help please---- need advice

    Could you help us understand a Dr's responsibility to a patient when a drug like radicava is approved for treatment. We don't know if my husband- who has slow progression at this time - should begin treatment. Thankfully -we have great medical insurance at this time- so finances aren't the...
  9. Clearwater AL

    Decisions...

    (I questioned whether to post this or not. Some may take it wrong but it may bring some conversation to this sub-forum. And… I’m not sure what sub-forum it belongs. Mods… move it if need be.) This is about decisions many of us face. First, I no seek of sympathy, Ann and I have been very...
    • Clearwater AL
    • Thread
    • cals chair christmas conversation early financial health insurance life palliative care power quality of life walker wrong
    • Replies: 30
    • Forum: Off topic everything
  10. E

    Needing some guidance!

    Hello All. I’ve thought long and hard before posting this as I’m very much aware of the daily struggles a lot of you here face. I am however finding myself on this site more and more frequently and feel untill I have my questions answered from people with real life experiences - only then will I...
    • Elizabethm12
    • Thread
    • advice anxiety back bfs cramps dentist diagnosis diet early emg emg? eyes family fatigue female financial fingers health iron life mri muscle muscle twitch neurologist nose questions sleep speech stages stress support swallowing symptoms tongue twitch twitches twitching update voice weakness weight loss work
    • Replies: 15
    • Forum: Could this be ALS?
Back
Top