Mamabear2017
New member
- Joined
- Aug 19, 2018
- Messages
- 7
- Reason
- Learn about ALS
- Country
- US
- State
- VA
25 y/o female of 2 young children here. I've been under a lot of stress this year.
Starting in January I started getting horrible tension headaches, body wide pain in almost every joint, bone and nerve. The doctor said it was TMJ.
Went to the oral surgeon he ruled out TMJ.
Went back to the doctor and had an xray of my spine and CT of my cervical spine and head. Both tests were normal. The doctor did some blood work and it came back that my vitamin D was a little low 28 (range 30-100). Started vitamin D replacement in June 2018 and I started feeling much better after 2 weeks on 4000 IU.
I had a few good months with only bouts of pain very minimal. Come August 2018 I had what I call another episode of pain. I admit I was under a lot of stress at the time (the doctor suggested fibromyalgia without any testing therefore I did not accept that diagnosis). But this episode was different.
After about a week of pain August 10th I went to see my chiropractor after my vitamin D level was drawn (45 considered normal). I had only been to the chiropractor one time. this time he did some trigger point therapy close to c1 and used a muscle stimulator on me.
During the muscle stimulation I had visceral twitches (felt like it was in my uterus). I didn't think much of it (chiropractor said it would not cause adverse symptoms not so sure now) I went home feeling unusual. Is it possible the current from the muscle stimulation irritated my nerves? No information supports this theory.
The following morning August 11th I woke up to extreme muscle twitches in my calfs bilateral. I took to the internet for answers MISTAKE.
The muscle twitches spread from my calf (had a hot spot for a while) to my arm, to my shoulder blades, chest, feet, gluteals, ribs. Body wide fasiculations constant, too many to count.
I made an appointment with my neurologist they got me in Aug 14th 2018. Neurologist concluded that I did not have weaknesses, atrophy or any other findings except bilateral hyperflexia (brisk reflexes) at the knees. She did not notice the twitches. She told me a list of things she would be looking for gave me an order for blood work, MRI, EMG. On that list of probable cause was demyelinating disease which did not calm my nerves.
So far I've had about 12 different blood tests (all negative) MRI or head and cervical spine normal. The EMG cannot be done until September 14th.
I'm worried I have a family to take care of and I start 2nd semester RN school on Tuesday. I've had fasiculations for 8 days consecutively.
At first fasiculations were strong. As the days go by i either don't notice them as much, or they are much less but they keep coming back. They were present at rest, would go away when I flexed my muscle. Now my muscles are more relaxed at rest I have less when laying down than I do when I'm sitting up right.
I've also experienced some cramping in my calfs that feels like contractions. My muscles will get extremely tight then relax I've only had this happen a few times only in my calfs.
I understand that this is early it's a process of elimination. But I'm still worried. Im sharing my story in hopes to receive some reassurance during this time of uncertainty.
Thank you. God bless.
Starting in January I started getting horrible tension headaches, body wide pain in almost every joint, bone and nerve. The doctor said it was TMJ.
Went to the oral surgeon he ruled out TMJ.
Went back to the doctor and had an xray of my spine and CT of my cervical spine and head. Both tests were normal. The doctor did some blood work and it came back that my vitamin D was a little low 28 (range 30-100). Started vitamin D replacement in June 2018 and I started feeling much better after 2 weeks on 4000 IU.
I had a few good months with only bouts of pain very minimal. Come August 2018 I had what I call another episode of pain. I admit I was under a lot of stress at the time (the doctor suggested fibromyalgia without any testing therefore I did not accept that diagnosis). But this episode was different.
After about a week of pain August 10th I went to see my chiropractor after my vitamin D level was drawn (45 considered normal). I had only been to the chiropractor one time. this time he did some trigger point therapy close to c1 and used a muscle stimulator on me.
During the muscle stimulation I had visceral twitches (felt like it was in my uterus). I didn't think much of it (chiropractor said it would not cause adverse symptoms not so sure now) I went home feeling unusual. Is it possible the current from the muscle stimulation irritated my nerves? No information supports this theory.
The following morning August 11th I woke up to extreme muscle twitches in my calfs bilateral. I took to the internet for answers MISTAKE.
The muscle twitches spread from my calf (had a hot spot for a while) to my arm, to my shoulder blades, chest, feet, gluteals, ribs. Body wide fasiculations constant, too many to count.
I made an appointment with my neurologist they got me in Aug 14th 2018. Neurologist concluded that I did not have weaknesses, atrophy or any other findings except bilateral hyperflexia (brisk reflexes) at the knees. She did not notice the twitches. She told me a list of things she would be looking for gave me an order for blood work, MRI, EMG. On that list of probable cause was demyelinating disease which did not calm my nerves.
So far I've had about 12 different blood tests (all negative) MRI or head and cervical spine normal. The EMG cannot be done until September 14th.
I'm worried I have a family to take care of and I start 2nd semester RN school on Tuesday. I've had fasiculations for 8 days consecutively.
At first fasiculations were strong. As the days go by i either don't notice them as much, or they are much less but they keep coming back. They were present at rest, would go away when I flexed my muscle. Now my muscles are more relaxed at rest I have less when laying down than I do when I'm sitting up right.
I've also experienced some cramping in my calfs that feels like contractions. My muscles will get extremely tight then relax I've only had this happen a few times only in my calfs.
I understand that this is early it's a process of elimination. But I'm still worried. Im sharing my story in hopes to receive some reassurance during this time of uncertainty.
Thank you. God bless.
