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LOYAL130418

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Joined
May 14, 2018
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5
Reason
PALS
Diagnosis
01/2018
Country
VIE
State
Hpg
City
18000
Hi everyone, I truly hope all the best to all of you and families.

First sorry for my bad English

I have the beginning symptoms of ALS about 6 months before , and diagnosed with ALS 1 months ago by EMG when I visited my neurologist (UMN and LMN he said). My scores ALSFRS-R is 46, only right hand/ arm weakness and a little atrophy…. now have a feeling something strange with right foot.

In 3 recent days, in the afternoon time I always have a heavy seizure (or ‘heavy cramp’ I dont what is in English ) in whole my body (something like Epileptic seizure or Malaria or suddenly get serious cold) within about 15 minutes and get fever ~39oC afterward, and stop within 2-3 hours

https://en.wikipedia.org/wiki/Malaria
https://en.wikipedia.org/wiki/Epileptic_seizure


My health is not good as 3-4 weeks ago when I still do few short runs

What is disease for this sympthoms ? anyone ever hear about this ??

Hopefully to hear comments, thank you very much for your help.

Michael
 

GregK

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Joined
Jan 29, 2013
Messages
2,775
Reason
PALS
Diagnosis
11/2012
Country
US
State
CO
City
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We do ALS, not guesswork on malarial symptoms.

Sorry to welcome you here, but those answers need to be found elsewhere. :-(
 

lgelb

Forum Supporter
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Joined
Nov 5, 2009
Messages
8,326
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
WA
City
Seattle
As Greg says, you will want to consult with your own doctor, but since ALS can strain the metabolism in early stages more than recognized, I would be sure you are getting enough energy in food, and liquid in drinking.

Welcome.

Best,
Laurie
 
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