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Hello everyone, and thank you for your time to read this and respond. I will be making a donation when I get paid. I’m 28 years old and have had twitches for 3 months. And yes I read the thread that if I have twitches read this first. The problem is that I have terrible health insurance and...

The CADTH (independent advisory body Health Canada consulted with) has published its recommendations on Edaravone use in Canada based on their research and consultations with ALS patients, caregivers and other health professionals. From ALS Canada The report can be found here...

This lady had s few health issues she had been putting off not wanting to go to the doctor. Finally she decided it was time to go for help. After her appointment she came home to tell her husband what the doctor said. As she began to tell him he rudely interrupted her and asked… “So what...

Today I had my remaining crown replaced with a temporary. In two weeks I'll go back for the permanent. The last thing I wanted to happen was for a cracked crown to break off when I'm not as mobile as now so I had it done. They had all the info in my chart and there was a new dentist only 28...

So, here I am exactly one week out from my husband's death. It was really only after he actually passed that I have started to realize the absolute hellfire we went through together. There was beauty, love, and moments of joy for sure. I am very sure I never felt closer to or loved another...

Hello- For the backstory on this thread, please see the original Familial ALS posting. Perhaps a moderator can combine these two? We have received the gentetic testing results from my husbands brother, who had ALS-like neuromuscular degeneration combined with a family tree with many ALS and...

Hi, Thank you in advance for your time. I've read many of the posts here and I am in a similar situation. My grandmother died at age 76 from ALS, and it has given me a lot of anxiety over the past 10 years related to it. I also had a more distant relative (a cousin of my father) who I believe...

I'll try to keep this as succinct as possible. I have been experiencing a variety of symptoms for several months. Symptoms have included; shortness of breath, fatigue, tripping/falling and most recently atrophy and weakness in my left leg. I have been evaluated by a pulmonologist...

My PALS finally received his PWC a couple weeks ago. He should have received it almost a year ago, but miscommunications & ball dropping happened. It is set up with a head array so he can drive it, and a joystick in the back so I can drive it. Unfortunately, his neck has gotten so weak, he is...