1. A

    Terrified of bulbar

    First I would like to thank everyone in this community that is being very supportive because I know your time is very valuable. I am a 25 year old male. It has been an ongoing battle with my mind for the past five years because ever since I turned 20 I would have twitches all over my body...
  2. D

    Cold Hands

    My hands are very cold today and purplish here and there. Also getting cold at night even with 2 or 3 blankets on.
  3. S


    What is the horse ness like with Bilbao onset? I’ve had twitching for 4 months with no muscle failure but I am horse now but I’m wondering if it’s allerogoes or a mild cold or bulbar?
  4. J

    Can't control my fear.

    Hi everyone. I know this isn't an anxiety or fear forum. But I have some concerns that I am really worried about and confused about due to Google. First off, I'm so sorry for anyone going through this disease- I don't want anyone to be wasting their time reading this because I'm not worth it...
  5. J

    How are you?

    How I hate that question now. It's become almost a default greeting. I know most people are trying to be kind by asking, but I honestly don't know how to answer anymore. I usually just say "We're OK" or "We're hanging in there". But honestly, we're not OK. And I'm sometimes just hanging...
  6. M

    Questions about symptoms

    Hi everyone. I am posting here for the second time, my first thread being that I was due for an EMG. The neurologist I went to here in South Africa deemed it unnecessary, although he did zero tests for any muscle weakness and is by no means an expert on ALS. He was extremely dismissive and did...
  7. M

    Concern over recent symptoms

    Hi all, First of all, thanks in advance to anybody who takes the time to reply to my post. I am a 32-year-old caucasian man currently living in Los Angeles. My symptoms started about 8 months ago with some intermittent muscle twitching that I noticed on and off in my neck, biceps, legs, all...
  8. S

    Eighteen, concerned that I may have ALS/MND.

    First, let me start by saying that I am here due to symptoms that have been concerning me for almost month. They are new symptoms that have arisen from other symptoms that have been occurring for over three months now, starting at the end of November. It all started when I had two bowls of...
  9. swalker

    Skiing at Vail

    Last Wednesday I went out for my first ski day of the season. For those new to my ski adventures, I ski with Vail's adaptive ski program, about which I just cannot say enough good things. I use a biski, which is a contraption with two articulating skis, a suspension system, and a seat for me...
  10. ShiftKicker

    Animal companions- share your pictures!

    It's been a bit of a wet and messy winter here. The cold weather seems to be hanging on longer than ever and stopping my bulbs from coming up and I am so ready for some warmth and spring bulbs! I was looking through my old albums for some pictures of flowers to console myself and came across...