Hello,
My name is Nancy and my dad has ALS and has had it for 11 years. My mom
has been his primary caregiver for all that time and about 4 months ago she
and my dad had to move in with me and my husband and two kids so that
we can help her somewhat with my dad's care. This is difficult at times since
both my husband and I work full time. We can help her at night and on the weekends
which is o.k. I guess since some weekends she just really needs to get out. Anyway
my dad is completely bed-ridden and he cannot speak or move at all. We have to turn
him all the time. He is in a lot of pain now and he was just seen at the clinic for ALS
in Philadelphia. My dad has asked the doctor to help him and my mom end this
misery. I always thought of my dad as the tough iron worker man but now he
is so feeble. I am a medical assistant so my mom feels I am so hardcore about
the reality of this disease when in fact I so many times cry alone and wonder
what it must be like to be in his world....how sad he is. Hospice will now be coming to
my house to make him comfortable. What is comfortable? Really. Anyway, I really
just want to clear my thoughts and I am sorry if I upset anyone. All my best wishes
to all of you with ALS and to your families and caregivers. GOD BLESS!
My name is Nancy and my dad has ALS and has had it for 11 years. My mom
has been his primary caregiver for all that time and about 4 months ago she
and my dad had to move in with me and my husband and two kids so that
we can help her somewhat with my dad's care. This is difficult at times since
both my husband and I work full time. We can help her at night and on the weekends
which is o.k. I guess since some weekends she just really needs to get out. Anyway
my dad is completely bed-ridden and he cannot speak or move at all. We have to turn
him all the time. He is in a lot of pain now and he was just seen at the clinic for ALS
in Philadelphia. My dad has asked the doctor to help him and my mom end this
misery. I always thought of my dad as the tough iron worker man but now he
is so feeble. I am a medical assistant so my mom feels I am so hardcore about
the reality of this disease when in fact I so many times cry alone and wonder
what it must be like to be in his world....how sad he is. Hospice will now be coming to
my house to make him comfortable. What is comfortable? Really. Anyway, I really
just want to clear my thoughts and I am sorry if I upset anyone. All my best wishes
to all of you with ALS and to your families and caregivers. GOD BLESS!