medical

  1. J

    Please do not be too quick to say NO to possible ALS diagnosis

    About 3-4 years ago I came to this forum and asked the dreaded question "Do I have ALS". I had some fasciculations and cramping in my feet, balance issues, spasticity in both legs and slight speech changes. I was assured by members that my symptoms were NOT symptoms of ALS and I went merrily...
  2. T

    Sinking - got a lifeline?

    Hi everyone. I apologize in advance for the length of this post. I’ve only been a registered user for less than 24 hours but am really impressed with the empathy and knowledge of posters and moderators. What a fantastic resource. I am on this site to not only utilize the nuts and bolts of...
  3. Bestfriends14

    Dodge Caravan SE 2014 Minivan conversion

    Hello, I know this type of question was somewhat covered in another thread, but we have an opportunity to buy a really decent wheelchair van at a good price. It has low mileage and is only 30k CDN. Does anyone know much about the above van? We'll be using it to drive from Calgary to Palm...
  4. D

    trach questions

    I would like to hear from any pALS or cALS who are living with a trach. I understand the medical and technical side of it, but I am interested in hearing the nitty-gritty ramifications of living with all of that at home. The real stuff. How do you staff, are there lay person family members...
  5. S

    Eighteen, concerned that I may have ALS/MND.

    First, let me start by saying that I am here due to symptoms that have been concerning me for almost month. They are new symptoms that have arisen from other symptoms that have been occurring for over three months now, starting at the end of November. It all started when I had two bowls of...
  6. ReginaS

    difference between the tobii medical device and the tobii gaming?

    My partner is using a surface pro (newest version) with the commercial tobii eyegaze bar for gamers(?) and it works - with a few kinks here and there. (Sometimes we need to restart or unplug the usb and plug it in again, we might have a way now for the bar to stay in place - the adhesive wore...
  7. J

    Brainstorm Nurown 'Right to Try' participant shares progress

    As some of you may know, Brainstorm granted one PALS free access to NurOwn as a 'thank you' for the work he did on Right to Try. He is not in a trial but is being given the course separately. His update is on Facebook -- matt.bellinski.7 Mod note -- not linking directly due to fundraising...
  8. M

    Likely Not ALS - that's good news!

    2 prior EMGs (Nov & Dec) with neurologist #1 noted chronic denervation, resulting in a "Possible ALS" diagnosis. First EMG (Aug) did not show any issues. Dr #1 was clear that lack of muscle weakness/atrophy after 9 mos of continuous fasciculations and cramping was encouraging. Next EMG in 3...
  9. L

    Rebuilding

    This will probably be my last post on the forum. At the time of Eileen's funeral I weighed 122 lbs, I am now at 134 lbs. I'm not sure if it is just my nature or my strong belief in God, but even before the funeral, I felt that God did not want me to waste the rest of my life in grief. I made...
  10. C

    MRI requested for my Dad. Why?

    My Mom had a call from a medical imaging center yesterday confirming my Dad’s MRI appt. She knew nothing about the appt and when asked who booked it they said it was requested by my Dad’s neurologist. Of course we can’t get a hold of his neurologist to ask why... Does anyone have an idea as...
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