iron

  1. S

    Advice appreciated

    Good morning and thank you for accepting me to post on this board. I did not ever think I would be making a post like this. I have read through the stickies and the previous posts regarding twitching and symptoms. I still had a few questions, if you don't mind. I have been to my PCP and...
  2. S

    Symptoms I have observed

    Hi, I have read the stickies regarding ALS and I admire the commitment of everyone who takes the time to answer all the questions. I am 63 years old male having retired from work last March and my general health is good, I have haemochromatosis (iron overload) which is well managed by my...
  3. C

    scared and need to vent.

    I have all the symptoms, increasingly bulbar to be specific. I have been in and out of the hospital the past couple of weeks, I have the follow-up appointment with Neuro on Wednesday. The first time he saw me he took ten minutes and then told me it was probably stress. I know why its because I...
  4. G

    Can B12 deficiency cause all these symptoms/signs?

    Hi, I'm a realtively old member of the DIHALS forum, so I'll try to be as straightforward as possible to recap the basics: My father passed away from PBP at the of 56. No other family member had MND, and he encountered both head trauma and large amounts of diesel exhaust. I've had widespread...
  5. A

    Could this be als?

    Dear all, I am 27 year old male. For the past 3 month i started to have severe panic attacks and depression which is caused by my hypochondria due to feeling very sick all the time. (Occasional difficulty breathing, tachycardia, feeling hot, sweating, tremors and low grade fever, losing 15 kg...
  6. C

    A Big Journey

    I don’t post here often but I you all still feel such a community and connection here. It’s been 1 year and 3 1/2 months since we lost Ted. I was thinking this morning that I used to mark my babies’ ages in months but eventually we just say their ages in years. Is it the same with marking a...
  7. E

    Needing some guidance!

    Hello All. I’ve thought long and hard before posting this as I’m very much aware of the daily struggles a lot of you here face. I am however finding myself on this site more and more frequently and feel untill I have my questions answered from people with real life experiences - only then will I...
  8. J

    Biphasic Cuirass Ventiliation by Hayek Medical -- anyone have experience with this?

    I wanted to check this out, as my husband uses the Trilogy 24/7 and experiences many discomforts due to the pressurized air being forced into his nose or mouth. Makes him congested and sneezy, which is an issue because he can't clear secretions easily. It's way worse when the humidifier is not...
  9. P

    Can I have some opinions?

    Hello Everyone, First of all I apologize to anyone if they have this, I mean no offense. Just wanted to list my symptoms and see if anyone thinks this is cause for concern. I am seeing my doctor on the 18th but I have been very nervous about my symptoms. Background, I am a 23 year old male...
  10. KimT

    What blood work to you do?

    I'm curious to hear what other PALS do for routine blood tests after they have been diagnosed. I do Comp. Met Panel and CBC every six months. I also do TSH every six months due to Hashimoto's (I use iodine supplements to get back from hypo to normal). I also do a C-reactive protein every six...
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