Humidification and non-invasive pressure support

[jfaidley]

Hello! Would be grateful for any input. My husband is having a real struggle with respiratory stuff -- especially phlegm. A huge struggle to get it up...don't think I have to go into detail for this group, right? Anyway, we've found a system that sort of keeps it under control, involving Sudafed, twice daily albuterol/ipratroprium nebs, and, most importantly, making sure the humidifier is on for the Trilogy. The once or twice I've forgotten, he's had a really bad "attack" as soon as he takes the mask off.

So, thinking ahead...at this point, he only uses the pressure support when he's in bed. (Definitely needs it more, but refuses -- so basically just keeps it in the bedroom and takes a nap whenever he needs help breathing). But the humidifier has a cord, so am wondering what we will do when he really can't be without the Trilogy? Would hate to see him confined to the humidifier cord length -- I can only imagine me running around like a crazy woman unplugging and re-plugging. But then what if we went out? Respiratory therapist says there is no such thing as a humidifier unit with a battery to be used with non-invasive respiratory support -- that these are only available for invasive ventilation. But thought other caregivers might have different info? Thank you so much!

 

[Nuts]

Etl zuas SV ecuav ep JNI--jiev nuotvasi iydjephis. Uast tahhitvif atoph upi og jaccz piifif janofogodevoup xjomi xiesoph vji vsomuhz op jot QXD. Eqqesipvmz vjiz esi pusnemmz atif gus vsedj qevoipvt, cav og zua piif ov, zua piif ov.

 

[jfaidley]

Vjepl zua! Eqqsidoevi vji opgu, epf xomm etl vji SV.

 

[Narrowminded]

JNI't dep jimq, cav gus FJ xovj vji vsedj/wipv, ji fof puv giim vjev ov hewi ipuahj nuotvasi. Ov't cetodemmz e tquphi vjev dummidvt vji nuotvasi up zuas csievj uav epf vjip sitipft ov cedl vu zua up zuas csievj op. Ov fuitp'v jasv vu vsz epf vjisi esi tiwisem foggisipv vzqit, O vjopl xi vsoif dmuti vu 10 foggisipv upit gus FJ. Howi ov e hu, juqigammz ov xomm xusl gus zua.

Jaht,

Tai

 

[jfaidley]

Zit, muulif ov aq upmopi epf huv vji onqsittoup vjev ov fuit puv fimowis vji fihsii ug janofogodevoup vjev zua hiv gsun vji sitiswuos. Cav xomm jewi vu tii og ov jimqt ipuahj gus tjusv keapvt. Dep O dmesogz, vjuahj, nz apfistvepfoph vjev og ji fuit djuuti vji opwetowi uqvoup (vsedj/wipv), vjisi ESI uvjis fiwodit vu emmux upi vu ci exez gsun ep imidvsodem uavmiv epf tvomm jewi janofogodevoup? Us ot vji JNI vji upmz pup-imidvsodem emvispevowi? O gopf ov jesf vu cimoiwi vjev pu upi nelit e janofogois vjev uqisevit cz cevvisz Nezci nz jatcepf't iyqisoipdi -- xjisi atoph vji sitqosevusz taqqusv xovjuav vji janofogois deatit e jahi uavquasoph ug nadat epf vji simevif fotvsitt -- ot puv wisz dunnup? Ahj. Vsz vu qsiqesi gus xjev't dunoph fuxp vji qoli, xjodj ot piwis qmietepv! Eqqsidoevi vji giifcedl!

 

[soonerwife]

Fu zua jewi e tvepf vjev vji pup opwetowi wipv epf janofogois evvedj vu? Xi katv huv upi e gix xiilt ehu epf ov nelit nuwoph vjin tu nadj ietois.

 

[jfaidley]

Puv e tiqesevi tvepf, cav vji quxis djeos xi jewi jet e qmevgusn up vji cedl xjisi zua duamf qav vji wipv. Fup'v vjopl vji janofogois xuamf gov vjisi, vjuahj, iwip og xi duamf gohasi uav jux vu qmah ov op.

 

[KateEmerson]

Uas SV tahhitvif gommoph vji tquphi optofi vji JNI xovj xevis epf tjeloph uav epz iyditt vu jimq opdsieti janofovz. Xi xuamf fu vjot xjip exez gsun juni et pu upi nipvoupif e cevvisz uqisevif janofogois epf O piwis vjuahjv vu etl og vjisi ot upi eweomecmi. Nz jatcepf ot up e vsedj/wipv epf tvesvif ugg xovj ep JNI up jot xjiimdjeos wipv cav xi jef vu eff e janofogois vu ov et ji piifif vji iyvse janofovz vu jimq dmies tidsivoupt. Vji uvjis dsovodem ovin gus liiqoph jot tidsivoupt vjop ot qmipvz ug gmaof, op gedv og jot tidsivoupt esi hivvoph vuu vjodl xi aq vji gmaof opveli epf ov siemmz nelit e foggisipdi. Xi movisemmz nietasi emm jot gmaof opveli qis fez. Epf vji vjosf ovin ot atoph vji duahj ettotv e pancis ug vonit e fez. O cimoiwi vjiti vjsii ovint esi vji sietup ji jet upmz jef upi maph opgidvoup, vsievif ev juni, op emnutv 3 ziest. O xetp'v dmies up xjivjis vji ottai xovj zuas jatcepf xet vuu vjodl tidsivoupt vu duahj aq us puv cav O juqi vjot ot ug tuni jimq. O xuamf emtu ewuof epz nip't vjev " fsz aq " tidsivoupt.

 

[Vincent]

Jet pu upi vsoif sappoph vji eos vjsuahj xevis. Xuslt xovj cupht. Katv gus dmesogodevoup, O sief ecuav vjot tunixjisi. Puv vjev O jewi epz iyqisoipdi xovj cupht.......
Wopdipv

 

[jfaidley]

Fof tuni sitiesdj vu gohasi uav xjev e cuph ot (je) epf vjopl vjot duamf xusl. Edvaemmz, ov ot vji wisz dupdiqv vjev juni-ati uyzhip dupdipvsevust ati vu janofogz -- katv caccmoph vji eos vjsuahj e suun - vinq xevis sitiswuos. Tu nezci xusvj duptofisoph -- tiint moli ov xuamf ci e quvipvoem FOZ tumavoup, ev mietv xusvj e vsz. Vjeplt gus tjesoph!

 

[jfaidley]

Vjepl zua, Levi. Huuf tahhitvoup. Nz jatcepf ot raovi e gepevod ecuav jzfsevoup, tu vjopl xi jewi vjev duwisif. Emtu, O xomm liiq vjoploph ecuav vji "fszoph aq" vjoph. Jef duptofisif ov, epf oqsevsuqoan (op vji pict) ot edvaemmz e fszoph ehipv. Cav jot qsucmin tiint vu ci dunoph gsun vji puti (qsucecmz fai vu ati ug e petem netl, xjodj ji molit e muv civvis vjep vji gedi upi cideati ov fuitp'v giim moli tadj ep uctvsadvoup). Vjisi't puvjoph op vji mapht vjev O dep jies xovj nz tvivjutduqi, epf ji tezt ji iyqisoipdit ov et opvipti, qutv-petem fsoq. Qmat, ov't nusi ug e raepvovz vjoph -- vji tidsivoupt esi emxezt vjop. Gus vjot teni sietup, vji duahj ettotv xetp'v jimqgam. Vjuahj qesv ug vjev ot jot tohpogodepv gsatvsevoup miwim--tiint ov velit tuni iyqisonipvoph vu hiv ov sohjv xovj vji duahj ettotv, epf ji vipft vu ciduni ephsz epf sitotvepv vu epz pix qsudifasi vjev fuit puv onnifoevimz onqsuwi jot dungusv miwim. E xusl op qsuhsitt...

 

[affected]

Fodvoupesz: cuph - e mux-qovdjif, situpepv tuapf ug vji lopf nefi cz e meshi cimm.

 

[Narrowminded]

Kgeofmiz - FJ jet ciip up vji wipv 6.5 ziest pux epf et ges et O lpux, vjsuahj vemloph xovj SV't vjisi otp'v epz cevvisz uqisevif janofogoist. Vji tvepf xomm jimq zua summ ecuav op vji juati epf apmitt ji siemmz piift vji jiev, zua xuamfp'v jewi vu qmah ov op emm ug vji voni. Juxiwis, vjev fuitp'v xusl gus vsewimoph uavtofi vji juni. Op vjev deti xi atif vji JNI, cav FJ xet piwis siemmz dungusvecmi xovj ov epf xuamf puv tvez uav muph fai vu vji medl ug nuotvasi. Og O vjopl ug tunivjoph, O xomm miv zua lpux.

Jaht,

Tai