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  • Hi Kate,

    You left a comment recently on Pinky's post that mentioned you were part of a CALS video support group. I've been looking for a support group that meets remotely via skype/zoom/etc. Would you be able to share info about your group with me? My membership here is still too new to be able to send PMs, so if you prefer to chat via email mine is (removed and sent via pm for privacy).

    Thanks,
    Erin
    PART B:
    Back again! (smile)
    ** I assume husband was a patient man with great attention to detail? It must have taken quite a while to complete.
    **Needlepoint was too challenging. Embroidery and cross stitch were easier. Now I do "art" photography.
    **Occasionally sealing the picture in a bag with an open container of moth preventative for awhile may keep them away. Check with conservator. General online info: http://aces.nmsu.edu/pubs/_c/C504/
    Under: Crocheted Bedspread Repair article regarding fabric storage: http://www.collector-repair-services.com/
    Moth-proofing: http://www.collector-repair-services.com/?tag=wool-moth-control
    For future possible repairing consider saving all unused yarn as directed above, etc.
    **I did so enjoy it. Better go now – midnight passed – new day. I hope this is OK. Lots of unknown “rules”. May blessings abound. B.
    PART A
    **Hi, Kate, Thank you! Perfect close ups. Said, “WOW” so many times, lost count.
    **For such detail, I think he used canvas with greater number of threads per inch, giving sharp detail of smaller areas. Probably used fine yarn, too. The background appears to have “dimensionality” to it. Close ups showed me why: darker brown is slanted, “traditional” stitch, from right to left. The light stitch, in the opposite direction: left to right. Light reflects differently; hence, the feeling to me of depth. Either direction, I think it’s called the “Continental Stitch.” A beginning stitch for all needle pointers. There may be approximately 44 different stitches in needlepoint. (I checked)
    **I did a needlepoint “CONGRATULATIONS” of naval signal flags for retired military family member. Unfortunately, stitches were the “backward” continental style, not USA. It’s the thought that counts.
    **PART B FOLLOWS:
    Greetings of the day, Kate.
    **I tried to enlarge the photo to see the detail and various stitches. Alas, it turns into pixels. If that is a needlepoint instead of the embroidery I thought it was, that means he did the background also. I am in awe of his persistence and expertise!!
    **I assume he was right handed? If left like me, it was even more of a challenge because he had to do it backward to get the stitches to flow in the right-to-left direction.
    **Such work is very intricate and time consuming, but very lovely when completed.
    **What a precious heirloom to cherish.
    (**If he used wool yarn beware of moths. They can get into picture frames - the little devils.)
    **Thanks for responding.
    **May you discover something beautiful today to lift your spirit. May blessings abound. B.
    New to this, I recently discovered the needle craft piece you made. WOW! It's beautiful. If you'd care to share, I'd love to know how was it done. May you discover something beautiful today to lift your spirit. May blessings abound. B.
    Hi Kate, I'm hoping your getting my messages. I'm not much into the computer so am hoping I'm doing what I'm supposed to do to get a message to you! Let me know. If you don't hear from me then I'm not doing something correctly. Jamie
    Hi Kate,

    My sister just got diagnosed with ALS, she is 51. Not sure what is the starting point.you have gone through the pain and shipping we can tap into your experience to help my sister manage the pain and emotions better.

    Do you think any of the alternate treatments...homeopathy or naturopathy work. What special focus we should give to the the diet. Also I read you mentioned about the testing for mineral levels, can you share that.

    Sorry too many questions, but at the moment I M looking for any straw to hang onto.

    Thanks
    Hi Marie Laurie, just wanted to let you know that I will respond to your message when I am a little more rested. My husband has been sick and I am just exhausted. I am thinking of you and am sorry for the losses you are experiencing.
    I would feel scared too. I have found, as have others on this site, that really focusing on today and what you CAN do really helps. Will get back to you soon, Kate
    I'm sorry to hear your husband is Ill Kate. It must be heartbreaking for you. I could not imagine it happening to any of my loved ones. I am in the early stages .My voice is disappearing , something I thought I could cope with but I don't think I really accepted what was happening. Now my legs are so heavy I know its travelling. If I admit it I'm really scared of what comes next. My first neuro examined me and said I think you have something incurable and untreatable. And left me with that. I paid private to see another one ,she told what she suspected and said to have hope. She wouldn't take the £150 fee off me. How many people do you meet like that Kate. She's lovely. I had a clean emg which she said is common with pseudo bulbar palsy. She asked would I mind getting a second opinion off her associate he said the same. Now my legs are giving in . I see the neuro again in July and another emg in 3 months .x
    Kate thank you for welcoming me . I don't discuss my illness with any one as it hurts them and it hurts me to see them hurt. Does that make sense. Here on this forum I feel I can let go a bit. But slowly. X
    Kate thank you for reaching out. I'm sorry for the delay but I never saw this. It's interesting, first time ever logging in on my phone and it pops up

    Yes friends tend to disappear since we cant go to them very often.

    It's wonderful to have the connections on here as we all get it.

    Have an awesome day tomorrow and I'll try to figure out how to find this area again

    Hugs

    Sue
    Hi Lisa,
    I am so sorry for not responding sooner but I just saw your message. This is the first forum I have ever been on and have had no idea how it all works. I am 63 and my husband is 80. My husband started with respiratory failure, was trached, and put on a ventalator 24/7 in Sept. 2013. I am so glad you reached out to me, I, too, have felt very alone. In the three years of this disease I have never spoken to another caregiver and have wanted to so desperately. I am holding it together, trying to live in the moment, with utter exhaustion being the most difficult challenge at the moment. I would welcome sharing if that is something that you would like also. Kate
    Hi Kate, you seem like a relatively new member and located in Boston! How are you doing with all this? My husband was diagnosed in 2014, I feel extremely alone trying to understand everything. May I ask what age bracket you guys are in? I am almost 50 and my husband is 52. Lisa :)
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