janicebuf
Active member
- Joined
- Jul 6, 2005
- Messages
- 36
- Reason
- Loved one DX
- Diagnosis
- 00/0000
- Country
- US
- State
- NY
- City
- east amherst
hi everyone, my brother was diagnosed with bulbar als about 5 months ago though his symptoms started in april (familial form). anyway, he is 46 and determined to continue to stay positive and fight it, which is wonderful. he is very active every day ar work however, he refuses to think about a peg tube because he said that is giving in to the disease and besides 'how much weight could i gain?' he is only 115 lbs. i said to him that he needs to look at a feeding tube in a positive way, not a negative way. that if he wants to contiue the fight he needs energy. does anyone have a feeding tube and if so, how much has it helped you? have you gained weight and how much? i need to have some responses for him when we discuss this again.
by the way, he is presently on the eric is winning approach and has just been detoxified for major heavy metals. we will know the results in about 10 days. he's been going for ozone therapy and iv chelation as well as nutritional iv for a couple of months now. we shall see...thanks again.
by the way, he is presently on the eric is winning approach and has just been detoxified for major heavy metals. we will know the results in about 10 days. he's been going for ozone therapy and iv chelation as well as nutritional iv for a couple of months now. we shall see...thanks again.