For the backstory on this thread, please see the original Familial ALS posting. Perhaps a moderator can combine these two?
We have received the gentetic testing results from my husbands brother, who had ALS-like neuromuscular degeneration combined with a family tree with many ALS and...
Thank you in advance for your time. I've read many of the posts here and I am in a similar situation.
My grandmother died at age 76 from ALS, and it has given me a lot of anxiety over the past 10 years related to it. I also had a more distant relative (a cousin of my father) who I believe...
Hello everybody, I have a question that I felt like couldn't be answered in the Stickies.
For about 3 weeks I have had issues where I am walking, and if I do a quick turn on one leg, I stumble a bit. I have gotten out of bed at night to have my legs shake uncontrollably, or I stumble around the...
My heart goes out to anyone with this horrifying disease. Nobody deserves it.
I have read the sticky in this forum and have been unsure wether I should post, but my anxiety about this disease is severe. I figure I should seek the advice of people who actually have this disease and...
One of my daughter’s first child had Cystic Fibrosis, which is a genetically passed condition. So they could have additional children with NO risk of CF they elected to have In vitro fertilization for the next children. Embryos were created and tested and only CF free embryos were frozen. IT...
long story short. my grandfathers side of the family has familial als. My grandfathers brother got the disease and died within two years. there mother had als and there grandmother also had als. although my grandfather did not get als. neither did his other 3 sisters or other brother get the...
Now nothing is left to speculation. Formally diagnosed at India's best neurological institute NIMHANS...FAMILIAL AND. Do not know what to do next...I have two small kids 11 and 6 year old...as per the docs there riluzole does not help in familial cases n there is nothing that docs can do...
I know what you’re thinking. But these symptoms are very real. . I am so sorry to bother all of you becasue I know you get these messages a lot. but please hear me out here
I am 20. About 3 years ago, when I was 17, I felt my first symptoms.I vaguely remember feeling somewhat heavy or...
shortness of breath
Hi everyone - I am seeing my primary care doctor tomorrow but wanted to get your opinion on my situation seeing as you have so much experience in this area.
My uncle passed away in Spring 2017 from ALS (he was late 60s) and my dad was just diagnosed with ALS (he is 74). I'm considering getting...