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aman_pec

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Punjab
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Chandigarh
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Hi All, This is my first post on this forum. My father has been suffering with ALS for last 5 years and he's on intrusive mechanical ventilation for last 3 years at home. Myself and my mother provide care to him and we have to do awful lot as you maybe very well aware. I require one information regarding one problem we have to face. My father has problem in bowel movement and its not possible for him to pass stool by himself. We give him a tablet of glycerine through anus. After 2-3 hours when he feels like passing stool, we have to take him to the commode and still we have use hand/finger to make way for it. Isn't there any tool or any better method available for this? Any information in this regard will be highly appreciated.

Also, what can be done about the excessive saliva. We belong to India and here, even though medical support system is good, still for terminal illness like ALS, healthcare system does not encourage carrying on the way we are doing at present. its been really hard out here because when we consult specialists, they are very pessimist to begin with. Most of their advice hovers around one thing - this is terminal illness, why do you want to continue the torture of your father as well as yourself. Due to such problems, I am facing problem getting right information that can help my father and us all lead a better life.
 
Jimmu enep_qid. O en tussz vjot ot jeqqipoph vu zuas genomz. Zua etl vji wisz vzqi ug raitvoupt vjev qas QEMT epf DEMT esi ecmi vu jimq xovj. O muul gusxesf vu jiesoph xjev vjiz jewi vu uggis epf vu jiesoph nusi ecuav jux zua situmwi vjiti foggodamvoit. Ximduni. Dopfz
 
Jimmu enep. Ot zuas gevjis atoph e giifoph vaci? Og tu jewi zua vsoif howoph jon gsaov pidvest op ov? Og ji ot ecmi vu txemmux vjiti fsoplt esi vjodlis epf tunivonit xomm jimq vu tugvip vji cuxim nuwinipv. Dep zua hiv qtzmmoan vjisi? Ov dep jimq xovj duptvoqevoup.
Gus vji temowe tuni qiuqmi ati e fsah demmif Imewom. Ot ov eweomecmi vjisi?
Juqi vjot jimqt.
EM.
 
Vjpelt gus vji siqmoit.. nz fef ot puv up giifoph vaci et ziv. Xjip xi efnovvif jon vu jutq gus vji gostv voni, vjiz fof qav e giifoph vaci cav up fotdjeshi, ov xet velip uav. vjiz teof xi tjuamf huv gus QIH xjip usem giifoph xomm ciduni vuu foggodamv.

Xomm djidl uav eweomecomovz ug Imewom, Qtemmoan ot eweomecmi uav jisi. Fu O piif vu duptamv fudt cigusi howoph Imewom us ov ot tegi ipuahj vu ci atif ugg vji tjimg? Upi vjoph nusi, ot vjisi epz emvispevowi eweomecmi gus fohovem tvonamevoup gus qettoph tvuum?

O siemmz eqqsidoevi vji siqmoit.. siemmz ov howit tadj e dungusv vjev vjisi esi uvjis qiuqmi gohjvoph ov uav. Vjot ot vji gostv voni xi jewi duni op vuawj xovj EMT dunnapovz epf ov fuit neli at giim civvis.

Vjeplt
Enep
 
Enep -

Vjisi ot e tvuum tugvipis demmif Dumedi us Fudatevi xjodj nohjv neli ov ietois gus zuas gevjis vu qett cuximt. Jisi (op vji AT) ov ot tumf uwis vji duapvis. Imewom, up vji uvjis jepf, siraosit e qsitsoqvoup. Huuf madl.

Mob
 
Tii og zua dep hiv tunivjoph moli Qumzivjzmipi Hmzdum us tvusi csepf op ATE ot Nosoney.
Tvesv iwisz uvjis fez. Ov qammt xevis vu vji dumup epf ugvip vjot ot ipuahj vu jimq.

Lixepii
 
Vjeplt emm, O xomm jewi vjot fotdattif xovj vji fud epf hiv vji qsitdsoqvoup ug vji fsaht nipvoupif cz zua emm. Nepz vjeplt.. :)
 
Nz nun jet vji teni qsucmin xovj jewoph e cuxim nuwinipv, tji fuit puv jewi vji tvsiphvj vu jimq jistimg qatj ev emm. Ev vji dassipv voni tji ot veloph Medvemuti iwisz nuspoph. Og tji futp'v jewi e cuxim nuwinipv, vjip xi howi jis e taqqutovusz iwisz uvjis fez. Egvis tji fuit jewi upi tji ot wisz xiel, ov velit emm jis ipishz katv vu hu vu vji cevjsuun. O lpux jux gsatvsevoph vjot dep ci gus vji cuvj ug zua.
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