1. Tomswife

    The movement that can make or break your spirit

    What movement do I dread, celebrate, express a sigh of relief? PALS Bowel movement. We went through a month of gravy. He suffered through the BM on Relyvrio, the big D. We celebrated weeks of nice mashed potatoes. Now I despair the return to gravy. BM is such a big factor in how our day...
  2. D

    Repeated denials for in home services

    I’m at my wits end here. PALS has almost no functional movement aside from head/upper torso and a few fingers. He uses his bipap about 20hrs a day. He can be left alone for an hour or so if he’s reading a book on his computer but he can’t move his hands so he’s stuck there if I’m not home...
  3. D

    ER for bowel movement?

    I can no longer stand and got a hospital bed a week ago. Don’t have the hoyer lift yet. It has been several days since I have had a bowel movement. Have asked for palliative care and should be approved. In power wheelchair 24/7. Suggestions please.
  4. F

    Concerned after initial neuro exam

    Hello, everyone. I was just wondering if I would be able to get some feedback and opinions from the wonderful people on this forum. I realize you guys get a lot of questions regarding things don't seem to be related to ALS, so I apologize in advance if I go down the same path. First of all, I...
  5. S

    Eighteen, concerned that I may have ALS/MND.

    First, let me start by saying that I am here due to symptoms that have been concerning me for almost month. They are new symptoms that have arisen from other symptoms that have been occurring for over three months now, starting at the end of November. It all started when I had two bowls of...
  6. Bestfriends14


    Hi all, The above protein/energy drink has been touted as a miracle drink for those with ALS. So much so that it claims that out of 250 people, half had symptoms stopped or reversed. It's been heavily pushed on an fb group site where they are now asking for money in order to "gift" two months...
  7. M

    Twitching for about two weeks - concerned

    Hi all -- Sorry to add another "twitching" thread to a forum full of them, but I suppose everyone's experiences are different and hopefully everyone deserves a chance to be heard. Here's mine: For about two weeks, I've had a twitch in one spot in the middle of my forehead. Same exact spot...
  8. F

    Trouble with Tobii Dynavox

    My mother has ALS and is able to only move her eyes, with some minimal movement of her left hand. She has been using a Tobii Dynavox to communicate. It has never been easy for her, but she has made it work. In the last few days, she has had more and more difficulty typing letters, such that at...
  9. MarieLaure

    Practical physics 101

    We all know that when a buttered piece of bread falls, it always lands on the buttery side. We also know that when a cat falls , it always lands on its paws. So here is how to generate eternal movement: Tie a buttered piece of bread on a cat’s back. Not too tight because you don’t want to hurt...
  10. P

    Is this atrophy?

    I posted at the beginning of January however my thread was closed which is why I have opened this thread. Since I was explaining my story in depth I already felt that my lengthy explanation was enough for people to have to get through without me attaching photos too. However, I briefly...