billyp
New member
- Joined
- Jul 21, 2013
- Messages
- 1
- Reason
- Learn about ALS
- Country
- UK
- State
- London
- City
- London
Hi
Am really after advice.
My symptons started in February , I woke during the night and had extreme difficulties swallowing. Went to hospital that night was sent packing with nothing wrong with you. This plus breathing problems continued for several weeks. Have had a swollen tonsil for years so had op to remove them. Since then symptons have persisted:
Swallowing difficulties
Finding it increasingly difficult to speak
Twitching all over
Muscle atrophy all over
Left side feels weaker than right
What muscle is left feels very 'spongy'
I visited a neuro and was told 99 per cent not mnd
But I seem to be getting worse
Blood results a one stage showed raised potassium levels this is now back to normal.
Kidneys were borderline whatever this means? But now back to normal
Raised platelets which has been on going for years.
The neuro made me do press ups which I can still do, I also walk 5 miles every day but feel very exhausted from this which before all this started I could do with ease.
Unfortunately my grandad died from mnd
And my auntie died from ms.
I am being told probably stress but I really don't think it is as I have gone from being virtually hyperactive to getting exhausted from trying to talk.
Am really after advice.
My symptons started in February , I woke during the night and had extreme difficulties swallowing. Went to hospital that night was sent packing with nothing wrong with you. This plus breathing problems continued for several weeks. Have had a swollen tonsil for years so had op to remove them. Since then symptons have persisted:
Swallowing difficulties
Finding it increasingly difficult to speak
Twitching all over
Muscle atrophy all over
Left side feels weaker than right
What muscle is left feels very 'spongy'
I visited a neuro and was told 99 per cent not mnd
But I seem to be getting worse
Blood results a one stage showed raised potassium levels this is now back to normal.
Kidneys were borderline whatever this means? But now back to normal
Raised platelets which has been on going for years.
The neuro made me do press ups which I can still do, I also walk 5 miles every day but feel very exhausted from this which before all this started I could do with ease.
Unfortunately my grandad died from mnd
And my auntie died from ms.
I am being told probably stress but I really don't think it is as I have gone from being virtually hyperactive to getting exhausted from trying to talk.