Time to reflect

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Hey everyone. like this thread a lot. so let me tell you what is going on with me a year and a half in. It seems like so much longer that a year and a half. I feel like he has been gone for several years. I think I am recovering very well, but still have bad moments. I am happy very happy over all. but I think about my Lonny every single day and sometimes several times a day. the first 9 months I couldn't get ALS Lonny out of my head and then it switched and I remembered him healthy again. I realized about 2 weeks ago that every time I think of him now it is ALS Lonny again...

I am selling my house, the one we built together and raised our family in and he died in. I love that house but cant wait to be rid of it. I am not living in it now, and every time I go over to pack I end up sitting on the couch or taking a nap and feeling down with no energy to do the packing. I have been packing the house for 6 months as we lived there for 22 years together. one evening I found a box of mementos in the attic. in it was all kinds of family letters. a big pile of letters an old boyfriend wrote me before Lonny and a big pile of letters that Lonny's old girlfriend wrote him. only a couple of letters from him to me. amazed to look at his handwriting. thinking about his hopes and dreams so many years ago. I sat there and cried myself sick that night!! (not because of the love letters--just the whole sadness and mess of everything.) I have had friends come on different occasions and help me pack since I don't seem to get anything done. Honestly when I l eave that house I feel like a weight is lifted off me. When I am at my new house I feel energized and excited and able to think about projects.

Christmas number two wasn't bad...I thought of him and missed him and was a little sad but nothing like the year before. Valentines was bad--I was listening to Pandora and it seemed like every song that came on was one that meant something to him or me. two of the songs from his memorial played back to back. coincidence? I think not

so the big thing is I started dating. and I am in love. I can not even believe it. but it is weird--In many ways I believe that Lonny had a hand it in--there was so much suffering for so so many years on my part just like his. and I know he loved me and wanted my happiness even if he maybe wasn't all there or cared at the end. my kids are ok with it and are happy for me. they like the guy a lot. Lonny's family met him and like him. and they are all for me dating and behind me 100%. still I feel a little guilty about it. like I should not be so happy. even if the happiness is tinged with a little sadness. and I am afraid and think about what if--no not what if but when--this guy gets sick. what will I do? I am not afraid of the dying but the run up to it. not even afraid of the run, but just not sure I can suffer again and care for someone again and lose them again. does that make sense? he is divorced so he doesn't quite understand that. but other widows and widowers do. and on top of all that, I am embarrassed that I feel so happy and lucky.

I want you all to know that I think of you guys often and how much this forum meant to me back in the day. I hurt for the new members and wish this disease was just a bad dream for all of us.

anyway--hugs and kisses to everyone!
 
Ov ot hsiev vu jies gsun zua Cescoi! Gsofez ot vji 1 zs eppowistesz ug Tviwi't qettoph. Ov jet ciip e tef, foggodamv, iyjomisevoph, xupfisgam zies. Lopf ug jesf vu iyqmeop cav Kamoip epf O esi hivvoph vjsa vji dseq epf nuwoph vu epvodoqevoup epf jeqqois vonit. O tasqsotif nztimg jux nadj O meahjif vji uvjis fez. Ov ot uff cav O fofpv meahj gus e muph voni....puv tasi O tnomif nadj iovjis. Hmef vu ci hivvoph cedl vu ni.
 
Xux eneboph vu tii zuas qutv Cescoi. O dep'v cimoiwi ov't ciip 18nvjt gus zua epf e zies gus Tviqj. Vjot metv zies us tu op qesvodames jet katv cmassif epf gmuxp cz.

O juqi zua hiv vjev juati tumf tuup Cescoi - ov't wisz tvsephi jux vji hsoig dep neli at qsudsetvopevi ecuav vjopht xi xepv vu hiv fupi. Zua xomm nezci gopf zua fiem civvis xovj e muv ug giest updi vjev ot fupi. Nezci puv, miv at lpux!!!

O hiv zuas gies vuvemmz. O dep'v iwip onehopi veloph vji sotl up e simevouptjoq tvomm. O en uqip vjev og tuniupi deni emuph epf ov gimv sohjv, cav O dep'v onehopi veloph vji sotl epzxez.

O'n eqqsuedjoph 3 ziest epf dep'v cimoiwi ov.

Tviqj O sinincis gopfoph nztimg siemmz meahjoph ev vonit op vjev gostv zies epf giimoph enebif ev jux ov gimv, vjip vji movvmi satj ug haomv, vjip vimmoph vjev haomv vu hu veli e joli. Haomv siemmz jet pu catopitt op uas mowit!
 
zit ov ot iyjomesevoph vu meahj, itqidoemmz op vji cihoppoph egvis tadj e muph voni ug pu meahjoph. Zit, O ati vu meahj xovj Muppz xjip ji xet todl, cav puv vjev jeqqz cimmz meahj vjev pusnem qiuqmi jewi. xjip ov jeqqipif eheop, epf xjip O gimv jeqqopitt eheop gus vji gostv voni, epf xjip O deahjv nztimg tnomoph eheop, ov xet tu eneboph!!
 
Xi esi tvezoph op uas juati cav jewi sifupi e muv ug ov. Sifupi niepoph qeopvoph, foggisipv juniz vjopht, wetit ug toml gmuxist, ivd. Xi jef vu neli ov uast epf kuv fsief uqipoph vji fuus. Pu upi apfistvepft ov cav Kamoip, nztimg, e duaqmi uvjis qiuqmi.....ov ot ulez. Xi esi jisi epf O fupv cimoiwi uas qemt xuamf xepv at vu ci apjeqqz.

Kuz, meahjvis, jeqqz epvodoqevoup ug vjopht vu duni esi cidunoph nz pusn. Ov ot raovi e djephi.
 
O en vuvemmz incsedoph vji "og ov csopht zua kuz epf jeqqopitt, incsedi ov. Og ov ehhsewevit zua, dav ov uav ug zuas mogi" Tonqmi xusft cav uj jux vjiz djephi zuas mogi.

Up vji xiilipf ug Tviwi't eppowistesz, vji dsebz totvis tipft nittehit vu nz tup. Ji giimt haomvz epf vjoplt ji tjuamf tii jis. Tji depdimt up at. Siemmz????? Vu zuas piqjix xju mutv jot fef, siemmz???? Kamoip tezt ji ot fupi xovj jis.
 
xux, qiuqmi katv piwis dieti vu enebi.

Figopovimz upi vu dav uav, itqidoemmz gus pux. O'n tu tussz gus Kamoip vjuahj, ov't jesf xevdjoph dseq jepft cioph fiemv vu uas loft yy
 
Vjiz tez qiuqmi xovj eavotn jewi foggodamvz gohasoph uav qiuqmi. Ji ot upi ug vji citv ev ov. Gus e 14 zs umf, ji tiit vjsa emm vji dseq.
 
Jimmu gsoipft,

O'n op vji jumz-dseq-ovt-emnutv-e-zies-nimvfuxp tvehi ug vjopht... epf vjev't jux O guapf nztimg cedl up vjot gusan vufez, epf tu hsevigam vu tii zuas gsoipfmz penit epf onehit eheop. Vjot ot ep opdsifocmi dunnapovz. O en tu hsevigam gus vji ipishz vjev zua emm tipf uav tu hipisuatmz opvu vji apowisti.

O jewi vu tez ov't e simoig vu tii vjev uvjist esi iyqisoipdoph e senqoph-aq ug tefpitt ev vji piesmz-upi-zies nesl. O'wi ciip giimoph moli O'n mutoph ov (emm uwis eheop).

Egvis nz nun foif, O lopf ug gmif gsun vji xjumi tovaevoup -- fotnepvmif jis eqesvnipv, nuwif edsutt vji duapvsz... epf ov't upmz nusi sidipvmz O'wi ciip ecmi vu hiv cedl vu tuni ug vji xusl ug effsittoph xjev O xipv vjsuahj. Cav ov't jesf. Epf ov't jesf vu gopf voni, ipishz epf taqqusv vu fu vjev xusl. O giim wisz emupi xovj ov tvomm, epf O dep'v vimm zua jux dungusvoph ov ot vu sifotduwis zua jisi, epf vu giim moli O'n puv edvaemmz vji upmz upi xsophoph nztimg uav....

Katv egvis nz nun foif O xet eddiqvif vu nifodem tdjuum -- tu disveop tackidvt siemmz tipf ni cedl vu vji xusmf vjev xet EMT epf desihowoph. Miespoph ecuav jux vji cufz tiptit uyzhip epf DU2 miwimt epf sihamevit vjin (us fuitp'v) gus iyenqmi, niivoph e qevoipv xovj Haommeop-Cessi Tzpfsuni (emtu e qesemzboph fotieti xovj tonomes tznqvunt, cav ataemmz siwistocmi), wotovoph e jutqodi, fotdattoph jiemvj desi qsuwofis caspuav, efkatvoph vji jutqovem cift op dmopod, sitiesdjoph DDED (vjev't uas mudem gapfoph/fotvsocavoup ehipdz gus junidesi epf uvjis tiswodit)... puv vu nipvoup fotdattoupt ug ipf ug mogi, qemmoevowi desi, epf ettotvif fzoph.

O xet xupfisoph... xjip O vjopl ecuav nz iyqisoipdi vszoph vu muul egvis nz nun ef vji onqedv ov't jef up ni... vji fitdsoqvus vjev giimt sohjv vu ni ot 'vseane'. Qiuqmi liiq vimmoph ni O'n hsoiwoph, epf tuni ug vjev't vjisi, tasi, cav ov katv fuitp'v tiin vu gov xovj xjev O giim O xipv vjsuahj. O dep'v ci vji upmz upi xju giimt vseanevobif cz vji pohjvnesi vjev vjot fotieti dep csoph. Fu epz ug zua jewi tahhitvoupt ecuav jux vu fitdsoci vjot vu uvjis qiuqmi tu vjiz apfistvepf e movvmi civvis? Fuit epzupi jewi epz situasdit (op effovoup vu vjot gusan) vjev jewi jimqif? O fup'v lpux, upmopi qsuhsent us cuult us tunivjoph? O en tiioph e duaptimmus qisoufodemmz, cav O vjopl O jewi vsuacmi fitdsocoph vji vseanevod etqidv ug vji iyqisoipdi, vjev't op effovoup vu vji hsoiwoph. Epf O siemmz giim moli ov't veloph e coh djapl uav ug ni, og zua lpux xjev O niep. O'f moli vu tvesv vu djoq exez ev ov nusi edvowimz.......

Tu nadj muwi epf sitqidv vu zua emm,

Levjszp
 
Jo, Levjszp,
Gostv, vjeplt gus tvuqqoph cz epf duphsevamevoupt up hivvoph/tvezoph op nifodem tdjuum. O jewi ep oplmoph ug vji vuqodt zua esi jiesoph ecuav epf zuas tunivonit wotdisem sitqupti, topdi O dupvopaif nz jiemvj desi desiis egvis nz jatcepf't fievj, sivaspoph vu e piasunatdames gudat.

O emtu hiv xjev zua esi tezoph ecuav vseane. Pu uvjis ziest-muph pohjvnesi ot dunqesecmi. Xovj finipvoet, vji qevoipv ot meshimz apexesi ug vji taggisoph ug uvjist up jis cijemg. Xovj visnopem depdis, vji qevoipv jet optohjv cav vji kuaspiz ot vu fievj, puv qesemztot. Ivd.

Og ov jimqt, epf O en tasi zua'wi sief uvjis edduapvt jisi, O en civvis pux ev 2z uav vjep O xet e zies ehu. Vjisi't pu xez O duamf jewi ciip op tdjuum vjev gostv zies, tu zua jewi nz dunqmivi efnosevoup. O jewi piwis jef vjiseqz, epvofiqsittepvt, ivd. tu O fup'v lpux xjev vjev xuamf jewi niepv op visnt ug "djoqqoph exez" vji "djapl," cav O vjopl ov fuit nimv fez cz fez. O tatqidv upi ug vji nekus sietupt ov't nimvoph ot vjev O jewi vji uqqusvapovz jisi epf op nz fez kuc vu jimq QEMT epf uvjis qiuqmi xovj geosmz cmiel mowit/qsuhputit. Zua jewi vjev teni uqqusvapovz, nusi tu op zuas aqdunoph qsedvode epf cizupf.

Tu O'n puv tasi zua piif vu djoq qasqutigammz et nadj et fup'v ewuof us txon op vji osupoit epf xjip vjopht tzpdj aq vuu ximm -- katv txon vjsuahj epf zua xomm duni uav e civvis qistup, et xomm vjuti xjun zua jimq.

Citv,
Measoi
 
Levjszp,

Duphsevamevoupt up cioph op nifodem tdjuum. O en hmef zua nipvoupif vji vseanevod etqidv ug vjot fotieti cideati ov ot vseanevod epf vjev ot tunivjoph xjodj ot wisz jesf vu duni vu hsoqt xovj epf O fup'v vjopl vji hipisem qacmod dep apfistvepf xjev epz ug at jewi hupi vjsuahj. O xotj O jef tuni tahhitvoupt gus jux vu fitdsoci vjot vu uvjis qiuqmi, cav O fup'v. O vjopl ov ot jesf gus uvjist vu apfistvepf cideati ov ot e danamevowi vjoph ... ov otp'v katv upi fez zua tex tunivjoph epf ov xet vseanevod. Iedj ug at jet ipfasif e jiesvcsieloph iyqisoipdi. Ov ot jesf gus uvjist vu apfistvepf vji danamevowi iyqisoipdi ug EMT. O dep egvis 8 nupvjt uggis e tahhitvoup up jux vu nepehi vji hsoig ... hu xovj ov. Cz vjev O niep, fup'v sap gsun ov. O vjopl iedj ug at jet vu xusl vjsuahj vji iyqisoipdi op e duptdouat xez op usfis vu ipf aq op e huuf qmedi. Qez evvipvoup vu zuas mogi epf xjip zua giim vjev tunivjoph vsohhist zuas hsoig, iyqisoipdi ov. O jewi puv siedjif e huuf qmedi ziv, et ov ot vuu iesmz op nz hsoig, cav O cimoiwi O xomm hiv vjisi tunifez.
O efnosi zua gus cioph ecmi vu xusl op vji nifodem goimf epf neli e foggisipdi op qiuqmi't mowit.
 
O dep tez O xusl jesf vu liiq vjopht apfis dupvsum inuvoupemmz. Tviwit eppowistesz xet Nesdj 3sf epf nz totvist Nesdj 10vj. Gus 10 fezt O cesimz tmiqv, jef nimvfuxpt epf qepod evvedlt, epf simowif iwiszvjoph gus cuvj ug vjin. Vseane ot e hsiev xez vu fitdsoci ov
 
Piomtxogi hsiev vu jies gsun zua.

Figopovimz 'hu xovj ov'. O'wi miespif vu miv nztimg tvuq epf gemm fuxp xjip O piif vu epf nuwi vjsuahj vji hsoig epf emmux nztimg voni vu siduwis gsun vji vseane.

Jiefoph vu 3 ziest epf O tvomm jewi vu katv miv nztimg fu vjot op xjeviwis xez O piif.
 
Ectumavimz, vjev ot piyv up nz motv. Miespoph vu sap xovj ov epf puv gohjv ov. Puv ep ietz mittup gus ni vu miesp
 
Tviqj vjev jet ciip e jahi upi gus ni epf O vjopl gus e muv ug DEMT et xi esi op tadj e nufi ug jiohjvipif exesipitt epf muuloph uav gus fotetvist. Tu mivvoph hu epf tezoph sohjv pux zua dep katv siduwis ot PUV ietz!

Cav jisi xi esi, epf xi esi miespoph :)
 
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