soakland
Member
- Joined
- Apr 24, 2016
- Messages
- 18
- Reason
- Learn about ALS
- Country
- US
- State
- FL
- City
- Cape Coral
I have been experiencing weird interactions with my family, both for those that live here with the PALS and me (CALS), and outside family members. We are Christians, and it seems that no one understands that I need a break. It seems so odd. Thank God I only work once a week and I have a lot of time to do things, but I still get exhausted, emotionally and physically. But family just doesn't understand. It seems like I am in this alternate universe and no one but those inside it can understand it. No one volunteers to help at all....nor will they give me advice on how to get time to myself. They think I am selfish or overreacting. They seem to forget that I (the CALS) am human too. Same with my PALS. Going from 6:00 AM until bedtime every day with no break. Not only do I care for my PALS but also my 95 year old father. He just needs light stuff like meals and the like. But I am finding that people just don't get it at all. They say "make time for yourself", but how? My father hates it when I leave, and I have a caregiver button for him and my PALS keeps FB messaging me if I go out. I feel trapped. Any advice?