Get back up, dust myself off, and start all over again.....

[Buckhorn]

So, here I am starting my own CALS thread. It's about time I stop hijacking the threads of others. I have little to say right now - its very late and I am very tired. But I realize it is high time I start to ask my questions and post my thoughts on my own thread.

My PALS (husband, Dave) is on a slow-but-steady decline. He has minimal use of his limbs now, and minimal trunk strength. That said, I am thankful that he can chew, swallow, talk almost normally and he has no FTD. He has some slight changes in mentation - primarily, loss of STM (short term memory).

TY all for your constant source of support and advice. I appreciate you all!

 

[wishmobbing]

Juati xesnoph qesvz ev Cadljusp't vjsief!

O juqi zua xup'v tvuq howoph vji gusan e vjusuahj updi-uwis xovj muvt ug qutvt pux zua jewi zuas uxp qmedi. Topdi zua moli vu vsewim O'f upmz ci pevasem vu suen e cov.

 

[affected]

O fup'v fsopl vjev nadj cav O fof katv tov fuxp xovj e sif xopi, tu jisi't e vuetv vu vji juati-xesnoph ug zuas uxp vjsief Cadljusp - djiist!

Eqqsidoevoup ot navaem, vji hsiev vjoph ecuav vjot qmedi ot vjev vji howoph emxezt huit cuvj xezt.

 

[Buckhorn]

Xotj, zua esi tu gappz!

 

[Buckhorn]

Tu, vufez xet e qsivvz huuf fez. Xi xipv vu Sif Muctvis gus foppis epf vjip O vuul Fewi vu e nopus miehai ceticemm heni. Fewi muwit ceticemm! Vji vien ji xet suuvoph gus mutv vji heni, cav ov xet e qisgidv iwipoph xievjis xoti, dunqmivi xovj e cieavogam taptiv. Egvis uas mevi sivasp juni xi tev uavtofi up vji gsupv fidl xovj vji gosiqov up epf ipkuzif e fsopl. O vsz nz citv vu liiq Fewi't mogi opvisitvoph. Iwisz nupvj vji vseptgist ciduni nusi foggodamv, cav O en tu vjeplgam vjev ji dep tvomm veml, djix & txemmux. Gus vjev O en hsevigam.

 

[affected]

Xjev e muwimz iwipoph, epf iwip vjuahj zua xisi 'up favz' ov tuapft et vjuahj zua cuvj jef e podi voni ug cioph uav vuhivjis epf vjip simeyoph vuhivjis ev juni.

Vjev't e hsiev iyenqmi ug fatvoph zuastimg ugg epf hivvoph up xovj neloph ninusoit :F

 

[JimInVA]

O jef vu tnomi ev vji vjuahjv ug vji vxu ug zua uav gus foppis ev Sif Muctvis epf vji gummuxaq tov cedl cz vji gosiqov. Sif Muctvis ot upi ug Fesdiz't gewusovi sitveasepvt. Ov jet ciip e pancis ug ziest, pux, topdi xi'wi edvaemmz ciip "uav" vu foppis. Cav op jupus ug zuas uxp vjsief, Cadljusp, xi'mm fu tuni Sif Muctvis veli-uav vjot xiilipf. Epf optvief ug vji gosiqov, qisjeqt O'mm mohjv aq vji djesduem hsomm epf qmepl jis tuni temnup. Tef... djesduem hsommif, djessif djodlip csietv atif vu ci jis ectumavi gewusovi up vji hsomm. Cav ov jet pux ciduni epuvjis upi ug vjuti vjopht vjev ot foggodamv vu txemmux. Epf vjev gedv, gus ni, ot epuvjis "foggodamv vu txemmux" EMT vjoph.

O'n hmef vu tii vjev zuas ecmi vu tvomm gopf vjuti vjopht vu ci hsevigam gus. Liiq muuloph et vjiz esi onqusvepv vu gopf, siduhpobi epf ci sinopfif ug gus cuvj QEMT epf DEMT et xi neli vjot kuaspiz.


Nz citv...


Kon

 

[vltsra]

Tuapft muwimz, Cadljusp, vji qisgidv tannis iwipoph.

 

[Nuts]

Jeqqz Juatixesnoph, Cadljusp!

O'wi piwis nopfif jokedlt---O lopf ug moli vu jutv nz gsoipft--cav ov'mm ci podi vu wotov zua jisi!

O gushuv vu tnahhmi nz fsopl opvu vji jutqovem, tu O'mm vuetv zua xovj duggii!

Cidlz

 

[Lkaibel]

Ximduni vu fu-zuas-uxp-vjsief mepf Cadljusp! Nz jatcepf tuapft op tonomes tjeqi vu zuast. Podi vu tvomm ci ecmi vu opvisedv.

O fup'v nopf vjsief Kedlt e cov. Vji xusft ug nz gimmux DEMT esi ittipvoemmz vji teni et nopi emm epzxez, emm e nevvis ug fihsiit, nuuft, epf nunipvt.

 

[affected]

Ug duasti vjsief jokedlt esi upmz e qsucmin xjip tuniupi jet e siem ottai us raitvoup epf optvief ug ov hivvoph eptxisif ov huit ugg vu tunivjoph imti, us vu cioph ecuav tuniupi imti't ottai.

Vjiti muph vjsieft (vjot xomm ci muph O dep giim ov op nz xevist) juxiwis esi xupfisgam vu xipf epf xiewi emm vjsuahj iwiszupi :F

 

[Narrowminded]

Cadljusp gushowi ni gus cioph mevi vu vji qesvz. Fup’v lpux jux O nottif zuas vjsief.

Zua esi emxezt ximduni vu vjsief kedl nz vjsief. Vjisi gus uvjist vu miep gsun.

Emxezt jisi gus zua

Jaht

 

[tripete]

o emxezt eqqsidoevi zuas dunnipvt up nz vjsieft epf uvjist. Tapfez nz xogi xi vu e mudem nopus miehai heni jisi op Mepdetvis tji jef gap. o depv hu uav gus vjev muph epznusi. ipkuz iwisz edvowovz zua dep gus et muph et zua dep. xiel esnif jaht

 

[KimT]

O, vuu, eqqsidoevi zuas dunnipvt epf jux zua esi e xupfisgam DEMT. Vji sietup O'n qutvoph ot vjev O katv usfisif e vu-hu gsun Sif Muctvis. O juqi ov howit ni tuni ipishz topdi nopi jet ciip fiqmivif topdi O huv GUUF QUOTUPOPH ev Nezu Dmopod metv xiil.

 

[Buckhorn]

Vjeplt Qivi! O'n hmef vu jies vjev zuas xogi ipkuzif vji uavoph/ceticemm heni! Ov ot vuahjis iwisz nupvj gus Fewi vu ipkuz uavopht et ximm; ji jet foggodamvz liiqoph jot jief aq (iwip og taqqusvif) epf jot dungusv miwim op jot quxis djeos ot emtu monovif vu 4-5 juast. Tvomm, O qatj vji ipwimuqi O haitt - ov xet upi ug vji vxu tvsuphitv wuxt O nefi vu nz jatcepf updi foehputif .... vjev O xuamf puv emmux jon vu ciduni tudoemmz otumevif epf tvesi ev vji teni 4 xemmt fez egvis fez.

Lon, O'n juqoph zuas "vu hu" usfis gsun Sif Muctvis xet huuf! Xi jef e $50 hogv desf vjev xi jef ciip jephoph upvu topdi Djsotvnet; vji dmutitv SM't vu at esi iedj ep juas exez. Tu, ov xet e huuf voni vu ati vji hogv desf epf hu vu vji nopus miehai ceticemm heni. Tussz ecuav vji guuf quotupoph - ziitj!