Bill, Thanks again for the Lunasin. It is hard to tell if it is helping, but it got me started and my wife decided she wants me to keep going with it so it was helpful for us to make the decision. I will post on how my V.Alert goes please do the same.
Pete, thanks for the recommendation for the V.ALRT. I ordered one. I found of all the suggestions that this one was the smallest and easiest to attach to your body. Hope you're comfortable and that you're having some success with the Lunasin. Thanks again. Bill
No I consider the EMG to be the "Gold Standard" of test. As I had respiratory onset, which is rare, they where surprised when they did the EMG to see immediately that it was ALS (I had already had all the blood work done that eliminated other possibilities). I am not familiar with anyone who has had muscle weakness then has a clean EMG and it turn out to be ALS.
I write you this message in hopes you can give me some perspective. I see by your recent post that it took a long time for you to get a diagnosis. I have had 4 EMG's with all doctors telling me it is not ALS. I was a BIG time athlete and I can no longer run. My legs ache/burn/twitch/feel stiff and have been downright awful for close to a year now. My right hand is losing its function and my breathing is brutal. So far, all these neuros say no and are stumped. What I am wondering...did they all say NO to ALS for you for a long time? Did you have a bunch of 'normal' EMG's? I hope you can reply. My heart and prayers go out to you.