- Feb 15, 2009
- Learn about ALS
This is my first post on any type of forum. I am impressed and humbled by everyone's willingness to discuss such a sensitive, personal topic and I don't want to diminish the seriousness with a frivilous post. But, like many posters on this site, I am feeling afraid and alone. Maybe someone has been in my shoes or maybe I just need someplace to actual put all this down. Here goes: I am almost 44 years old, female. Just recently, I realized that I have sleep apnea (my husband noticed it) and that my heart "skips" a lot of beats. I made an appointment with my GP. In the few days before that appointment, I experienced numbness, weakness in in my right hand - mostly in the ring finger and pinky. I type at work a lot so wrote it off as carpal tunnel or something similar. It seemed to mostly resolve but is tingly most of the time. The very next day, my calves - both of them - began to ache like "growing pains" I had as a child. I also began to experience twitches randomly in my legs and arms. When I saw my GO, he seemed to think it could all be explained by the apnea - I guess the oxygen starvation of the muscle? - and set me up for sleep study which has not been scheduled yet. They will also check for RLS, although I have never had those type of symptoms and now, in fact, my legs feel better and I twitch less when I am laying down. Anyway, the aching continues, though I don't notice weakness in my legs. Today I also started to have twitching in my right hand (thumb, pinky, pointer), weakness in my right bicep and noticeable twitches in the arches of both feet. It seems like everything is snowballing by the minute. I asked my doctor for a neuro referral and have an appointment in two weeks. I am not usually an alarmist and I don't run and look up every symptom on the internet but this is an extreme situation for me and I am truly afraid of having ALS. Any words of wisdom while I wait for neuro? Thanks for listening....