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corwin

Active member
Joined
Oct 20, 2015
Messages
47
Reason
DX MND
Diagnosis
01/2016
Country
BG
State
VN
City
vn
Hi!
Some update. Last update 😊
After 5 days in Istanbul hospital under survalience of member of Turkye MND-ALS doctor group( he was 65 years old proffesor who had a lot of Als patients) numerous tests 17 vials of blood, emg done by their best emg specialist, they found .... nothing
ABSOLUTELLY clear emg. No abnormalities. They saw the atrophy in my hands, put the needle inside and the muscle was ' perfect'....
So obviuos atrophy in tongue, hands, shoulders, arms, legs, foots and butt but perfect clean emg.... The guy tested 11 muscles from both sides...
In the end the doctor told me' You have something wrong. Very brisk reflexes, transmition signal loss in some muscle - this is for shaking, but you do not have als in my 45 years of experience....

So back to the beginning...
I can be some of the 1% who have clear emg but I highly doubt....

So thanks for tue support, for my mental health is better to stay away a little from the forum. I hope this is my last post and won't come with bad news.

Wish you luck to all and one more time thanks for the support.


P.S. some interesthing thing. The doctor told me the MEAN age of Als in Turkye is 35 years. They have a lot of 30 years old patients who are soldiers.
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
8,315
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
Thank you for the update. I wish you luck in finding your answer. I am glad it is not ALS and I am glad you pursued another opinion
 
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