1. T

    Goodbye Mr Twinkle.

    My darling brave husband passed away last Wednesday at 13.22pm. He was so ill in hospital, but he proved himself to be a fighter for 30 days whilst suffering from bulbar mnd, pneumonia, sepsis, and a lower bowel perforation. I am so undoubtly proud of my husband. His name was Peter, he was 58...
  2. T

    The passing of my father

    This is to my father who passed away on July 25, 2018 at he the age of 52 from ALS. I am sad to say the I have not seen my dad in over 2 years and will surely miss him. The last time I talked to him was last year and the last thing I remember talking to him about was did you get snow where he...
  3. B

    Christian faith and hope in song.

    It’s nice to share spiritual things one finds meaningful in and to their life. The following song was sung during a live-streamed service on the computer. Finding it meaningful, I thought you may also. The illustrations are lovely. Scan and paste the code into the address and Enter. Turn...
  4. W

    Dear Mother Passed Away on 3/22/2018

    My sweet mother (Sharon Mae) was diagnosed with ALS in 2013 and it completely came unexpected. To make matters worse, we were separated in different states. They said 5-years and it was about that. I had not known she had gone downhill that quickly and was taken by surprise when the care...
  5. pdcraig

    Need some advice and a bit of a ramble

    It's been a long time since I last posted. My PALS is still hanging in, defying all predictions. It's sometimes hard to believe it's been over 5 years. He's reached the point where swallowing is a real issue. No PEG, he won't consent. He's saying he is choking on his saliva all the time. When I...
  6. L

    New Year

    We don't make a big deal about the new year. But 2017 has certainly been terrible for us, lost all three pets, my broken foot in March and then Eileen's diagnosis in May. Life since then has been both hectic and restrictive. I know that we are not alone with the difficulties of this disease...
  7. N

    My Father

    Hi All, My father passed away on 8th Aug 2017 from ALS. I am writing this for others who may find our experience helpful. We live in Mumbai, India. My father showed symptoms for ALS since Feb 2016. Initial symptoms included weight loss, weakness, lethargy (especially in the morning) and...
  8. M

    My husband, my light

    My husband passed away early this morning. He went to the bathroom in the middle of the night and fell. The disease had advanced to a point where it was difficult for him to breathe without the ventilator. Unable to get up and to breathe, he passed away. I hadn't heard anything and found him...
  9. M

    "Concerned" update

    In january (i believe) I posted on this forum after experiencing twitching in my legs for a few months. I had done a lot of "research", reading, and self-diagnosing. My grandmother died of ALS in the 80's. And so familial was within my radar. However, it would take a month for me to even see a...
  10. A

    Trying to grieve

    One month and one day! I'm checking in to say hello and to let you know that this forum is still so very helpful. Since Jim's death I have been surrounded by family and our three sons. I've had wonderful support from so many. But still I cannot leave this journey behind. Jim's funeral was held...
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