no diagnosis

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Irish7

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Hi there, haven't been here for a few weeks. I have finally been to London, University Hospital, and have met Dr.Michael Strong on Oct 17, and it was a trying day as many of u people know. Lots of questions, muscle and strength tests, and reflex tests. My wife and I were told that in his opinion, the symptoms that I have do not seem consistent with A.L.S. So blood tests and x-rays followed. Also had a clinician look and hear me talk and walk, she said something about ataxia. Something about my voice and wide gait (WALKING). Dr. Strong says A.L.S. is not ruled out, he is just clearing the slate and starting all over again. So I will have to go back for more tests. A very long emg test and another test , not sure of the name, quessing Nvc.........electrical test or something or other. Mr.Strong is quite the specialist, felt quite comfortable with him.....and he is also a straight shooter..........that's what I have always liked in any person.........don't beat around the bush...........now it is a waiting game, should be back there in 2 weeks. Just staying positive whatever the outcome......I just say that I would not wish this on anyone, everyday is adapting, hoping, praying and fighting this damn disease, and I'm not going down without a fight............EVER...........
 

Al

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That's why for centuries they have called us the Fighting Irish. You are in a good place in London. I haven't met the man but have met some of his patients and colleagues and everyone speaks highly of him. If he can't figure you out then probably no one will. Good luck. I know the EMG and NCV tests are no fun but necessary. Take care and let us know how you make out. AL.
 

CindyM

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Hi Irish7! Sorry to hear you have to continue your wait and dontinue more tests! I am in exactly the same boat. Had a Spinal Tap a couple of weeks ago and will go Monday to get the results but as I am in some sort of plateau right now I expect they will say we have to wait and see. I agree it is hard to wonder and quess and just wait for answers but GrampaAL is right when he says to hang tight and try not to worry. Some days that is easier to do than others!
 

sufernan

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Irish - best of luck!

Hello Irish,
My latte husband Daniel and I went through the same process two years ago. Dr. Strong is a good doctor and we liked him very much. We live in Toronto, but liked how direct and honest Dr. Strong was with us, so we went to see him when we could.
I am thinking of you and send you lots of healling energy your way. I hope you will have very good news next time you are in London!
Sunny
 
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