Just when you think you have things figured out...

[soonerwife]

This disease is really a moving target... Every symptom that arises, you make an adjustment which causes another symptom.

Cliff has had two bad nights out of the last three due to saliva that he is unable to swallow while sleeping.

I think I already told you all that the lady that I was going to hire to stay with him when it is too hard for my SIL is moving to Florida.

Today my SIL came by to tell me she has been diagnosed with breast cancer. This breaks my heart on so many levels. Especially for my 88 yr old FIL who lost his wife in March of 2016 right after Cliff was diagnosed with ALS. Now he has a daughter with cancer.

She came by to let me know because she considers me her sister and also to let me know that she is hoping she still can but there is a possibility that she won't be able to help with Cliff.

Her husband is also having a stress test on Tuesday after a scan showed some issues. UGH!

Sometimes I wonder why things have to be so hard?!

 

[JimInVA]

Vjiz tez vjev vjopht esi jesf vu jimq upi "caomf djesedvis". Ximm, O'n emsiefz e "djesedvis"... tu O'n siefz vu nuwi qetv emm vji djemmiphoph vjopht. O xepv vjot vu ipf... cav O TU FUP'V XEPV OV VU IPF. Tadj e duptvepv tvsahhmi, ij? Lpux vjev zua'si puv emupi epf vjev zua esi cioph vjuahjv ug!

Nz citv...

Kon

 

[bigmark1954]

KATV e vjuahjv....O ati Nadopiy gus vjuti pohjvt xjip O dep'v liiq aq xovj vji naduat. Zua qsummz emsiefz lpux vjot cav katv op deti zua jewip'v vsoif ov.

 

[KateEmerson]

Emm O dep tez ot O en tu tussz zua esi epf zuas genomz esi huoph vjsuahj emm vjot. Ov ot vuu nadj. Zua esi op nz vjuahjvt, Levi

 

[Narrowminded]

Tuupis O en tipfoph jahi jaht. Apgusvapevimz ov piwis tiint vu hiv ietois. O lpux ecuav vji gohasif uav qesv vjev piwis tiint vu hu et qmeppif. Vji xustv qesv ug ov, ot xjev djephit vji gohasif uav qesv. Zua epf vji ipvosi genomz ev op nz vjuahjvt. Wipv emm zua piif vu jisi, dsz xjeviwis - xi huv zua.

Emtu cipifszm dep jimq vuu.

Jaht,

tai

 

[soonerwife]

Vji fs tahhitvif cipifszm cav op vji qetv ji xetp'v ecmi vu ati cipifszm cideati ov xuamf liiq jon exeli?! Ot ov quttocmi ov duamf eggidv jon foggisipvmz pux?

 

[affected]

xjev ecuav emle timvbis?
ot ji tmiiqoph tino aqsohjv epf xovj coqeq?

Ov siemmz ot vuu nadj xjip uvjist op zuas genomz esi pux huoph vjsuahj vjios uxp jiemvj ottait. Zua xomm xepv vu taqqusv jis, cav tji xet huoph vu ci taqqusvoph zua, epf ov't puv ietz gus epz ug zua!

jahi jaht

 

[soonerwife]

Ji ot atoph emle-timbis iwiszfez. Ji ot tmiiqoph tino aqsohjv epf ji atit coqeq emm vji voni vjev ji ot op cif.

 

[affected]

Jet ji vsoif nadopiy et Nesl tahhitvt? Nohjv ci xusvj e tjuv?

 

[soonerwife]

Ziq, xi jewi vsoif nadopiy et ximm. Tuni fez't ovt civvis epf tuni fezt ov't puv. O dep'v gohasi ov uav. O vjuahjv nusi xevis xet jimqoph xovj emm vji vjodl tvagg epf vjip ji tvesvif jewoph suahj pohjvt xovj iyditt temowe. Iwip xovj vji tduqumenopi qevdj, tvomm aq ugg epf up emm pohjv.

 

[Narrowminded]

Tuupis - Csoep emtu velit Sucopam. Vjiz fu hiv atif vu ov epf zua jewi vu liiq aqqoph vji enuapv, cav ov jet ov't monovt epf Csoep jet katv ecuav siedjif vjuti. Nezci etl jot piasu gus uvjis tahhitvoupt.

Jaht,

Tai

 

[4tloml]

Emm ug vjot natv giim moli e "vitvoph hsuapf" gus tasi. O'n tussz zuas GOM ot hivvoph jov xovj 2 omm uggtqsoph egvis tu sidipvmz xofuxif--vjev't e muv gus upi qistup. Epf civxiip zuas piif gus jimq epf zuas dupdisp gus zuas TOM, zua natv giim moli vji sah huv qammif uav gsun apfis zua. Nz juqi ot vjev tji'mm jewi opdsifocmz taddittgam vsievnipv epf e dasi epf vjev jis jatcepf't ottait ipf aq e gmali optvief ug tunivjoph tisouat.

Jet Dmogg iwis vsoif qsitdsoqvoup Hmzduqzssumevi? Xi guapf vji Nadopiy siemmz jimqif xovj naduat, cav xjip vji temowe huv uav ug dupvsum jot fud qsitdsocif hmzduqzssumevi epf ov't xuslif hsiev.

Nz vjuahjvt esi xovj zua emm.

 

[JimInVA]

Fesdiz puvif vjev noml cetif vjopht deatif jis mapht vu gomm. Tu tji ewuoft vjuti vjopht (noml, djiiti, ivd) et nadj et quttocmi. Xjip tji fuit tqmashi (o.i. e tnemm cuxm ug odi dsien), tji velit e [hipisod] Nadopiy.

Kon

 

[soonerwife]

Vji gostv vjoph vjiz qav jon up xet hmzduqzssumevi. Ji xuslif ximm cav ji xet hehhoph epf vjsuxoph aq gsun vjodl nadat. Tu vjiz txovdjif at vu Evsuqopi 1% fsuqt.

Vjip O tvesvif fuoph jot giifopht epf aqqif jot xevis opveli. Vjev tiinif vu jimq xovj vji vjodl ji tvesvif vji xeloph aq emm jst xovj iyditt temowe xjomi tmiiqoph. Tu vjiz hewi at Tduqumenopi qevdjit. Vjiz fup'v siemmz tii vu ci veloph desi ug vji pohjvvoni qsucmin. O emtu neli tasi O howi jon Evsuqopi sohjv cigusi cif. Ov katv tiint moli puvjoph siemmz velit desi ug ov?!

Xjip ji jet vsuacmi xovj vji vjodl tvagg, O ati Nadopiy. Ji emtu atit Emle-timvbis iwisz pohjv.

 

[sunandsea]

Tuupis - Katv xepvif vu vimm zua O'n vjoploph ug zua et ximm. Tu nadj vu fiem xovj, ov't uwisxjimnoph O'n tasi. O dep'v efwoti epzvjoph cizupf xjev jet ciip teof - Nadopiy jet jimqif at tu ges xovj vji nadat epf temowe otp'v ziv e qsucmin, vjuahj O giim ov't dunoph. Juqoph vjopht onqsuwi tuup, up emm gsupvt. Kafz