Belivianie
New member
- Joined
- Oct 27, 2024
- Messages
- 3
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- FR
Hello everyone, I hope you’re doing well on this Thursday, November 14th.
I really didn’t want to have to do this, but the progression of my symptoms is really worrying me. I’m really starting to wonder if the cause is actually anxiety…
To start with, I think it’s important for me to describe myself a bit: I’m a young 20-year-old woman of African descent living in Europe. For about three months now, I’ve been experiencing rather troubling symptoms to say the least…
It all began on a random Saturday in late August when I suddenly felt a sharp pain in my left shin. At first, I thought it might be thrombosis since I had flown a few weeks earlier, but my mom quickly reassured me.
A few days passed with the same pain coming and going, until one day, I started experiencing fasciculations in my left leg. It worried me a little, but not too much, since I’d occasionally had fasciculations in my arms before this month and as a child, I often had twitches in my left eyelid when I was very stressed.
At that point, I was also dealing with chest pain and shortness of breath, so I was more focused on my heart than on the fasciculations. I spent my entire summer holiday going back and forth between home and the hospital, convinced I was having a heart attack.
Then, as the frequency of the fasciculations increased, I started to worry and looked up whether it was something serious on Google. That’s when I came across ALS unfortunately.
Of course, I immediately panicked, especially as I’m extremely afraid of death after my father’s sudden passing in a motorcycle accident last year.
By mid-September, I began having slight trouble speaking, which would come and go. Nobody ever said anything to me.
This immediately made me think of bulbar onset ALS, and I became extremely anxious and depressed, i was recording my voice almost everyday to see changes.
In October, I began biting my tongue more frequently when I spoke, which also came and went. This is when the burning sensation in my toes and left arm started, along with pins and needles sensations in various parts of my body. I started worrying about diabetes and even began avoiding sugary foods, as I’m already at a higher risk for diabetes due to another condition I have.
This month has been the hardest yet : I have pain in my right thumb that feels like it’s being pulled by rubber bands, along slow fasciculations that feels like tingling, wrist pain, and wrist making cracking sounds when i move it.
Most recently, starting at the beginning of this week, my teeth have been clashing when I talk. I’m biting my tongue even when it’s at rest in my mouth, and I’m experiencing fasciculations in my tongue. I also feel like I’m struggling to swallow my saliva properly, and I often have mucus in my throat, though this issue has been around for a while.
Earlier today, I was with a friend. We had just finished eating at a fast-food place when I choked on my saliva for no apparent reason. I feel like I’m checking all the boxes for this disease, and it’s overwhelming.
I’m under extreme stress, and it’s affecting my life in so many ways. I can’t concentrate on my studies, and I find myself obsessively reading about the disease for hours on end on Reddit and other forums.
I have an appointment with my family doctor on the 18th. Honestly, I feel like I’m only a shell of who I was before all this. It feels as though I’ve lost my sense of ease and innocence.
I really didn’t want to have to do this, but the progression of my symptoms is really worrying me. I’m really starting to wonder if the cause is actually anxiety…
To start with, I think it’s important for me to describe myself a bit: I’m a young 20-year-old woman of African descent living in Europe. For about three months now, I’ve been experiencing rather troubling symptoms to say the least…
It all began on a random Saturday in late August when I suddenly felt a sharp pain in my left shin. At first, I thought it might be thrombosis since I had flown a few weeks earlier, but my mom quickly reassured me.
A few days passed with the same pain coming and going, until one day, I started experiencing fasciculations in my left leg. It worried me a little, but not too much, since I’d occasionally had fasciculations in my arms before this month and as a child, I often had twitches in my left eyelid when I was very stressed.
At that point, I was also dealing with chest pain and shortness of breath, so I was more focused on my heart than on the fasciculations. I spent my entire summer holiday going back and forth between home and the hospital, convinced I was having a heart attack.
Then, as the frequency of the fasciculations increased, I started to worry and looked up whether it was something serious on Google. That’s when I came across ALS unfortunately.
Of course, I immediately panicked, especially as I’m extremely afraid of death after my father’s sudden passing in a motorcycle accident last year.
By mid-September, I began having slight trouble speaking, which would come and go. Nobody ever said anything to me.
This immediately made me think of bulbar onset ALS, and I became extremely anxious and depressed, i was recording my voice almost everyday to see changes.
In October, I began biting my tongue more frequently when I spoke, which also came and went. This is when the burning sensation in my toes and left arm started, along with pins and needles sensations in various parts of my body. I started worrying about diabetes and even began avoiding sugary foods, as I’m already at a higher risk for diabetes due to another condition I have.
This month has been the hardest yet : I have pain in my right thumb that feels like it’s being pulled by rubber bands, along slow fasciculations that feels like tingling, wrist pain, and wrist making cracking sounds when i move it.
Most recently, starting at the beginning of this week, my teeth have been clashing when I talk. I’m biting my tongue even when it’s at rest in my mouth, and I’m experiencing fasciculations in my tongue. I also feel like I’m struggling to swallow my saliva properly, and I often have mucus in my throat, though this issue has been around for a while.
Earlier today, I was with a friend. We had just finished eating at a fast-food place when I choked on my saliva for no apparent reason. I feel like I’m checking all the boxes for this disease, and it’s overwhelming.
I’m under extreme stress, and it’s affecting my life in so many ways. I can’t concentrate on my studies, and I find myself obsessively reading about the disease for hours on end on Reddit and other forums.
I have an appointment with my family doctor on the 18th. Honestly, I feel like I’m only a shell of who I was before all this. It feels as though I’ve lost my sense of ease and innocence.
