Volunteer22
New member
- Joined
- Oct 26, 2018
- Messages
- 7
- Reason
- Learn about ALS
- Country
- US
- State
- TN
- City
- Knoxville
Hello everyone,
I posted back in October about some worrisome symptoms that I was having. The main symptom being a feeling of being off balance while standing. That has gotten worse. Since then, some things have changed. My calves have constant fasciculations. They never stop. I was very strong back in July, to the point of doing 320 lbs for 20 reps on calf raises. I am still able to do 225, but only for 5 reps. My squat has gone from 225 x 10 to 225 x 3. My calves also cramp frequently if I need a strong contraction. The fasciculations aren't limited to just my calves. In fact, they are all over my body. My left shoulder, left 1st dorsal interossei, left hypothenar eminence, and right 1st dorsal interossei have atrophied. However, according to the neuro, "You still have a robust muscle there, so suspicion is currently low. Your left hypothenar eminence could have always looked that way and you're just noticing." My left shoulder also hurts frequently.
I have since had two EMGs and NCVs. I have the results of the first and am going to attach it to this post. I will get the results of the second one as quickly as I can. The conclusions from the EMG I have posted are as follows:
NCS findings most consistent with a mild demyelinating peripheral neuropathy affecting the legs. EMG findings most consistent with benign fasciculations. Very mild cubital tunnel across the elbow.
I'm still worried about ALS as a possible diagnosis, because how often is a 29 y/o going to have peripheral neuropathy in his legs, and an unrelated neuropathy in the elbow? I also can't get over the feeling of weakness in my legs and arms. It's not clinical weakness, but it doesn't feel as strong to me.
Has anyone else had a presentation like this? Thank you all for taking the time to help those like me.
I posted back in October about some worrisome symptoms that I was having. The main symptom being a feeling of being off balance while standing. That has gotten worse. Since then, some things have changed. My calves have constant fasciculations. They never stop. I was very strong back in July, to the point of doing 320 lbs for 20 reps on calf raises. I am still able to do 225, but only for 5 reps. My squat has gone from 225 x 10 to 225 x 3. My calves also cramp frequently if I need a strong contraction. The fasciculations aren't limited to just my calves. In fact, they are all over my body. My left shoulder, left 1st dorsal interossei, left hypothenar eminence, and right 1st dorsal interossei have atrophied. However, according to the neuro, "You still have a robust muscle there, so suspicion is currently low. Your left hypothenar eminence could have always looked that way and you're just noticing." My left shoulder also hurts frequently.
I have since had two EMGs and NCVs. I have the results of the first and am going to attach it to this post. I will get the results of the second one as quickly as I can. The conclusions from the EMG I have posted are as follows:
NCS findings most consistent with a mild demyelinating peripheral neuropathy affecting the legs. EMG findings most consistent with benign fasciculations. Very mild cubital tunnel across the elbow.
I'm still worried about ALS as a possible diagnosis, because how often is a 29 y/o going to have peripheral neuropathy in his legs, and an unrelated neuropathy in the elbow? I also can't get over the feeling of weakness in my legs and arms. It's not clinical weakness, but it doesn't feel as strong to me.
Has anyone else had a presentation like this? Thank you all for taking the time to help those like me.