lexilou999
New member
- Joined
- Jun 4, 2009
- Messages
- 3
- Reason
- Loved one DX
- Diagnosis
- 12/2008
- Country
- US
- State
- vt
- City
- northfield
Hi all, my grandmother is failing incredibly fast from ALS as diagnosed late this last winter. She is now on a feeding tube and likely soon to have a tracheotomy to help her breathe. She is almost completely immobile now, and needs help to do anything- in the last two months the decline has been just astonishing.
All I can do is try to help in small ways an she has been really affected by incredible insomnia and what she describes as an awful metallic taste and film in her mouth. Even though she is on the feeding tube (thankfully she stabilized her weight) she can still eat regularly but can't stand to eat because of the taste. I have searched all over and see that this is a common complaint of ALS and other patients but cannot find anything to help her out.
Does anyone have any magic answer for her awful taste, or the incredible insomnia which she can't seem to battle. Prescription sleeping pills made her nearly demented and she is now trying Valerian root as a natural aid.... any info is so much appreciated, I am looking for anything to help her out at this point. Thanx so much, Alexis
All I can do is try to help in small ways an she has been really affected by incredible insomnia and what she describes as an awful metallic taste and film in her mouth. Even though she is on the feeding tube (thankfully she stabilized her weight) she can still eat regularly but can't stand to eat because of the taste. I have searched all over and see that this is a common complaint of ALS and other patients but cannot find anything to help her out.
Does anyone have any magic answer for her awful taste, or the incredible insomnia which she can't seem to battle. Prescription sleeping pills made her nearly demented and she is now trying Valerian root as a natural aid.... any info is so much appreciated, I am looking for anything to help her out at this point. Thanx so much, Alexis