taste

  1. J

    Question to bulbar pals

    i'm still fighting. started with a limb onset, spread all over my body, but took only my right foot. by now. maybe my lungs are weaker. it started in oct. 2018. with bulbar - i lost taste completely, continued to cough. it was not having any problems with breath by then, and my cough progressed...
  2. R

    Worried I may have ALS , scared beyond belief , no one to talk to

    Hello everyone , thank u for taking time to read my post , any and all feed back is greatly appreciated , and for all of u suffering with ALS I pray for u all and am starting a campaign to raise and donate money for ALS ! Ok so here is my story , for the past 2-3 years I have suffered with what...
  3. JimInVA

    Shifting Sands...

    Our journey began at a Joe Bonamassa concert in November of 2012. With no advance warning, Darcey was suddenly having difficulty walking. Later that same night, she'd be unable to rise from a seated position. It was the beginning of a life phase that neither of us anticipated. For all of...
  4. KarenNWendyn

    Altered sense of smell/ taste

    Has anybody here experienced an altered sense of taste or smell related to ALS? We’ve previously discussed phantosmia (phantom scents) in ALS on this forum, but I’m noticing that some previously appetizing smells are now offensive. For example, the smell of turkey cooking (especially turkey...
  5. K

    PALs Losing Tastebuds?

    Hello, all, Anyone else have the experience of their PAL losing their sense of taste? Today I asked my mother how she liked the new seedless jam I got her. She said she had no idea. She can't taste most of her food. She did not have bulbar onset, but she is starting to have more bulbar...
  6. ReginaS

    9 months past diagnosis

    Hi all, My partner was diagnosed w. ALS in February (2018). He might have noticed the first signs in Oct. 2017 in his right foot. He got a leg brace for drop foot. His right arm/had and foot/leg are very weak. Now he has significant pain in his right wrist. I got him a brace and it's best if...
  7. D

    Sore in mind and body

    Hi all Firstly, you are all incredible and the way you put up with the clinically anxious is astounding. I have over the last two years had significant health challenges, since developing severe Sepsis, which resulted in kidney and respiratory failure. Since that time I have undoubtedly...
  8. N

    Extensive medical workup; symptoms getting worse

    Hey there, I’d like to start by saying I appreciate those who are going through this illness and vigilant on these forums, as the comfort of having friends with same possible experiences is something that helps with my current fears. Here’s my last 3 months of hell: Male Age 29. Before...
  9. I

    Cannabinol through a feeding tube?

    As a help for leg pain and difficulty sleeping, I have turned to cannibus. Just got my card yesterday and have been trying to find a dispensary. I guess that finding one to provide 8:1 which is what the doctor suggested is going to be difficult. Aside from that, I have talked to a friend who...
  10. K

    Just looking for input

    Hi, I am posting about symptoms that I have been seeing in my father over the last 2 years. He is 73. He started having trouble swallowing his food about 2 years ago. He seen several doctors, and had a scope done, and it was brushed off as aging. He was told to chew his food better, and...
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