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suzannj

Distinguished member
Joined
Jul 5, 2008
Messages
121
Reason
Learn about ALS
Country
US
State
NY
City
Buffalo
Hi Everybody,
So, I'm putting my money where my mouth is and I am in the beginning stages of putting together a fundraiser! I've planned very large events for my company, but never anything quite like this . . .so wish me luck! :grin:

I have contacted the ALSA and ALSTDI to start the process, get permission to use their names, obtain some marketing materials, etc., and here's where I thought I'd get some help from the Forums: I need a catchy, creative title for the event. It will be held winter 2010 and will be a skiing and snowboarding challenge at a local (Buffalo, NY area) ski resort. (Think of a sort-of mini Olympics with prizes for fastest times, etc.)

I'm SO excited and feel like I'm actually doing something to both raise awareness and raise money for ALS research.

Looking forward to your great ideas!
Suzann
 

Marjorie R. Wilcox

Senior member
Joined
Nov 21, 2007
Messages
660
Diagnosis
10/2007
Country
US
State
New York
City
Richmondville
My daughter and her family live near Buffalo and they go skiing all the time. When this event takes place, Rick and I would like to attend if we can. I think it is near them. Please let us know the time and exact place when you get this together. It's a great plan!

In case you don't know us, Rick has ALS.
 

suzannj

Distinguished member
Joined
Jul 5, 2008
Messages
121
Reason
Learn about ALS
Country
US
State
NY
City
Buffalo
Hi Marjorie,
I don't think we've ever talked on the Forums but yes, I did know about Rick and my heart breaks for both of you.

What a small world it is though that you have family who live so close by! When this really gets going, I'm sure I'm going to need some volunteers, so maybe you can plant that little seed in their minds now! :smile: I will definitely post updates regularly so you and Rick will be sure to know the where and when . . .maybe we'll end up actually meeting each other!
 

BethU

Extremely helpful member
Joined
May 11, 2008
Messages
2,644
Reason
PALS
Diagnosis
05/2008
Country
US
State
California
City
Los Angeles
Suzann, that is fabulous! What a great idea ... and you're actually DOING it.

I'll start the brainstorming on titles ...

MEET THE CHALLENGE
ALS SNOW ANGELS

That emptied my brain. Maybe it will start working again later. :)
 

Jennifer51

Distinguished member
Joined
Jul 7, 2008
Messages
441
Reason
PALS
Diagnosis
03/2008
Country
UK
State
England
City
London
fundraising

Well done you, I dont have any bright ideas for your venture, but just to say that I opened a fundraising page on JUSTGIVING dot com
I passed on details to any one I spoke to and my adult children did the same at the companies, banks they worked for, through the intranet of the banks. We had someone do the london marathon, a sponsored swim, a charity golf day, then I contacted the private school which my sons attended, reminded them of all the years I was on the pta and raised funds for them, so they had a no uniform charity day for me. Total raised so far is approx $24,000 and more events planned. All monies raised was in the name of the mnd assoc (uk) and was sent direct to them, nothing came in with my name on. The mnd assoc uk were very helpfull in sending T shirts and assorted necessities to assist with the fundraising. Us little people CAN make a difference and I wish you all the luck in the world. We are all on the als planet wherever we live. I also found it gave me a sense of purpose by doing something positive to try to beat this thing. Keep us informed of your progress. GOOD LUCK
 

hopingforcure

Very helpful member
Joined
Feb 14, 2008
Messages
1,420
Diagnosis
09/2007
Country
US
State
USA
City
Any
How wonderful, My family love snowboarding, snowmobiling, and the like, we would love to come and attend. I will put my thinking cap on for some ideas for adding to your already fabulous event. Thank you from all of the pals and cals alike, it is with people like you that a cure will be found. Bless your heart...my 30 second thought was.. GO DOWN HILL, SO ALS PATIENTS DONT HAVE TO...
 

BarryG

Extremely helpful member
Joined
Nov 19, 2008
Messages
2,981
Diagnosis
02/2008
Country
CA
State
Alberta
City
Hinton
To expand on Beth's idea, how about:

ALS SNOW ANGELS
Sliding towards a cure
 

awieleba

Very helpful member
Joined
Apr 28, 2008
Messages
1,023
Country
US
State
michigan
City
oakland twp
wouldnt it be great if pals/cals and all the people on this forum could come and participate or meet one another! It would be great, lets make a plan for 2010 to all meet each other..............and raise money for ALS!
 

hopingforcure

Very helpful member
Joined
Feb 14, 2008
Messages
1,420
Diagnosis
09/2007
Country
US
State
USA
City
Any
Wow what a great idea, We could actually get national Media attention for that kind of effort. Could you imagine how amazing that could be for ALS.. I love the idea...
 

brendapals

Senior member
Joined
Jul 6, 2008
Messages
953
Reason
PALS
Diagnosis
06/2008
Country
US
State
any
City
any
ALS SNOW ANGELS

SLOPING FOR A CURE


I'm also just throwing stuff out of my brain tonight. Sounds like a great fundraiser, and I'd love to mark my own calendar to attend!
 

redneck charger

Active member
Joined
Nov 29, 2007
Messages
99
Reason
Loved one DX
Diagnosis
05/2005
Country
CA
State
Ont
City
Carleton Place
Hi Everybody,
So, I'm putting my money where my mouth is and I am in the beginning stages of putting together a fundraiser! I've planned very large events for my company, but never anything quite like this . . .so wish me luck! :grin:

I have contacted the ALSA and ALSTDI to start the process, get permission to use their names, obtain some marketing materials, etc., and here's where I thought I'd get some help from the Forums: I need a catchy, creative title for the event. It will be held winter 2010 and will be a skiing and snowboarding challenge at a local (Buffalo, NY area) ski resort. (Think of a sort-of mini Olympics with prizes for fastest times, etc.)

I'm SO excited and feel like I'm actually doing something to both raise awareness and raise money for ALS research.

Looking forward to your great ideas!
Suzann

That is wonderful news, and wish you the best.. I organized 2 golf tournaments and both very successful.. Thank you for doing this for ALS..
 

rocmg

Distinguished member
Joined
Dec 29, 2008
Messages
388
Reason
PALS
Country
UK
State
N/A
City
N/A
ALS SNOW ANGELS

SLOPING FOR A CURE


I'm also just throwing stuff out of my brain tonight. Sounds like a great fundraiser, and I'd love to mark my own calendar to attend!

cute, funny AND gets the message across.

i like this one!
 

Zaphoon

Extremely helpful member
Joined
Aug 2, 2008
Messages
2,855
Reason
DX UMND/PLS
Diagnosis
08/2011
Country
US
State
Missouri
City
Springfield
Hey Hoping,

I like that "Going Down Hill So ALS Patients Won't Have To!"
 

Kevinski

Active member
Joined
May 23, 2006
Messages
70
Reason
PALS
Country
CA
State
Alberta
City
Calgary
Just some idea

ALS Winter Games
Racing for the Cure

Hi kevinokeefe from Calgary i was involved in there big walk www.bettysrun in Calgary iecery june.Every year they pick an ambassedor ,like i was ambassedor this past year,puts a face on the event.if you want i can email you some people's names that have been doing this for years,Last years walk and run in Calgary raised 525000 for research and patient care.take care and good luck
 
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